Evan went to visit a specialist in the Seattle area on Monday, December 17th. The doctor seemed very positive concerning Evan's condition. After following the prescribed treatment plan, he would like to see Evan for a follow-up in the next 2 to 3 months.
The bonus of this new doctor? He is a really neat Christian doctor that shared some insights spiritually. The added bonus to that? He has a soft spot for families that adopt from his days working with a Christian Adoption Agency so he offered a deep discount to David and Trena on Evan's care.
God is so amazingly good is so many amazing ways...some times my mind is just so small I forget how mighty He can be and is!
Please continue to keep the family in prayer.
Blessings -
Camille
Wednesday, December 19, 2007
Friday, November 16, 2007
Friday, November 16, 2007 Update
Hi all...
Here is the latest news from Trena:
Evan had an EEG done on Monday and can be officially gradually taken off his seizure medication. He is doing really well and that they are expecting God to touch Evan in a miraculous way, all ultimately bring glory to God's name and kingdom.
David and Trena are planning on looking at having him seen by a natural alternative doctor in the Seattle area. God seems to be leading in that direction and they are taking one day at a time.
I will update as I receive more news. For those of you that do not get to see Evan regularly, he is looking fantastic and is such a busy boy! I had the pleasure of sitting with him during church a few Sundays ago and he sat quietly through the entire service flipping through my Bible...first one way and then the other. He also spent some time drawing pictures on my notepad. In my observation, he does not seem to have any lasting side-effects from his earlier surgery and treatments. He is such a happy little fellow!
Blessings to all of you! Please continue to lift Evan and all of the Gimmaka's up in prayer.
Camille
Here is the latest news from Trena:
Evan had an EEG done on Monday and can be officially gradually taken off his seizure medication. He is doing really well and that they are expecting God to touch Evan in a miraculous way, all ultimately bring glory to God's name and kingdom.
David and Trena are planning on looking at having him seen by a natural alternative doctor in the Seattle area. God seems to be leading in that direction and they are taking one day at a time.
I will update as I receive more news. For those of you that do not get to see Evan regularly, he is looking fantastic and is such a busy boy! I had the pleasure of sitting with him during church a few Sundays ago and he sat quietly through the entire service flipping through my Bible...first one way and then the other. He also spent some time drawing pictures on my notepad. In my observation, he does not seem to have any lasting side-effects from his earlier surgery and treatments. He is such a happy little fellow!
Blessings to all of you! Please continue to lift Evan and all of the Gimmaka's up in prayer.
Camille
Friday, October 5, 2007
Update from September 27, 2007
Evan had his check up today. His fluid level on the brain has gone down considerably. The shunt setting is now at 2.0, which means Evan's body is doing most of the work getting the fluid off the brain. There was a bit of blood in the fluid, most likely from a typical toddler fall, so when they adjusted the shunt last week, it drained most of that fluid off.
The tumor is continuing to grow faster than anticipated, however, the doctor feels that surgery at this time would not be the best option for several reasons. One, being the location of the tumor, which would allow them to only remove about 50% of the tumor. Another reason is that they feel Evan could suffer a stroke during the procedure.
The doctor believes that starting oral chemotherapy would be the best option for Evan right now. All the doctors involved with his care will be meeting soon to discuss the options, and if they are all on board with chemo being the best option, it will most likely begin sometime in October.
Please continue to keep Evan and the rest of the Gimmaka's in your prayers. God is the Great Physician and He is the one that knit Evan together in the womb.
Blessings to you all -
Camille (on behalf of the Gimmaka's)
The tumor is continuing to grow faster than anticipated, however, the doctor feels that surgery at this time would not be the best option for several reasons. One, being the location of the tumor, which would allow them to only remove about 50% of the tumor. Another reason is that they feel Evan could suffer a stroke during the procedure.
The doctor believes that starting oral chemotherapy would be the best option for Evan right now. All the doctors involved with his care will be meeting soon to discuss the options, and if they are all on board with chemo being the best option, it will most likely begin sometime in October.
Please continue to keep Evan and the rest of the Gimmaka's in your prayers. God is the Great Physician and He is the one that knit Evan together in the womb.
Blessings to you all -
Camille (on behalf of the Gimmaka's)
Wednesday, September 19, 2007
September 19, 2007 Update
Hi all...
Trena called me a bit ago with an update on Evan's condition.
He was scheduled for an MRI today, and the results weren't as expected. They had to adjust his shunt, and the tumor is 'growing more than anticipated' according to the doctor. Evan will have to have a CAT scan next week for a more thorough evaluation of what is going on. He has been a bit more cranky than usual, Trena said, and has not been getting a restful night's sleep.
Please continue to lift him and the family in your prayers!!!
I will update again some time next.
Until then, may His blessings rain upon you -
Camille
Trena called me a bit ago with an update on Evan's condition.
He was scheduled for an MRI today, and the results weren't as expected. They had to adjust his shunt, and the tumor is 'growing more than anticipated' according to the doctor. Evan will have to have a CAT scan next week for a more thorough evaluation of what is going on. He has been a bit more cranky than usual, Trena said, and has not been getting a restful night's sleep.
Please continue to lift him and the family in your prayers!!!
I will update again some time next.
Until then, may His blessings rain upon you -
Camille
Thursday, August 16, 2007
Thursday, August 16, 2007 - Update
We went to Spokane Children's Hospital on Tuesday for Evan's first MRI since he was discharged from the hospital. Unfortunately, the MRI was a failure. Evan's body did not properly respond to the sedation drugs they administered to him. So........since he was not completely sedated they could not do the MRI. He will have to have another one with complete sedation in the next week or two. They are trying to get it scheduled and then they will call me with the date and time.
We did see his nuerosurgeon and oncologist and they thought he looked great. It looks like he will have to have MRI's every 3 months for the first year. We are still praying and believing for a complete healing! God is faithful and we are so thankful that Evan is doing so well.
I gave him his first hair cut since he was hospitalized in June. His hair had grown considerably since 1/2 of his head was shaved for his surgery. If you did not know about his surgery, you would have to look really close to see his scar and shunt.
He is a busy little boy; walking, running and talking more and more everyday. He loves to open drawers and empty their contents.
Thank you again for all your prayers!
Blessings, David and Trena
We did see his nuerosurgeon and oncologist and they thought he looked great. It looks like he will have to have MRI's every 3 months for the first year. We are still praying and believing for a complete healing! God is faithful and we are so thankful that Evan is doing so well.
I gave him his first hair cut since he was hospitalized in June. His hair had grown considerably since 1/2 of his head was shaved for his surgery. If you did not know about his surgery, you would have to look really close to see his scar and shunt.
He is a busy little boy; walking, running and talking more and more everyday. He loves to open drawers and empty their contents.
Thank you again for all your prayers!
Blessings, David and Trena
Sunday, August 5, 2007
Sunday, August 5, 2007
Evan had his first check up appointment since he was discharged from the hospital on July 6th. His appointment was with his neurosurgeon and also to do a head CT to check the shunt that he was in his head.
Some of the nurses recognized him at the hospital and could not believe how much better and healthier he looked compared to when he was in the hospital.
Evan had to have a CT of his head and they also had to do what is called a contrasting CT, which requires an IV so that a type of fluid can be put into his veins during the CT. The CT went well and the doctor's appointment went well, but they had a terrible time getting an IV into his arm. It took 3 attempts and 3 different nurses. I remembered the nurse's name so that if we have to do this again, I will be requesting that she do the IV procedure so that it is not so tramatic for Evan (and me!!).
Evan weighed in just over 30#!!! That is 7.5 # heavier than he was 3 or 4 days before he was admitted in the hospital on June 18! Needless to say, he is doing wonderful and is making progess on a daily basis. He is back to walking and running everywhere and saying many more words than he was ever said before! We thank God for our little (maybe not so little anymore) walking, running and talking miracle!!
Evan goes back to the hospital the middle of this month for a tumor clinic appointment where he will have an MRI and then we will meet with several doctors and determine how things are looking on the inside of his little head. I assume that this last appointment we had a couple of days ago and the one coming up will determine just how often we will have to come up to Spokane for his CT's and MRI's.
We thank God for His touch on Evan's life, and will continue to pray that God will completely heal him! Your continued prayers would be much appreciated!
Thank you, everyone, for your many prayers and support that has been shown in so many different ways! God's richest blessings to you!!
Blessings,
David, Trena and Evan
Some of the nurses recognized him at the hospital and could not believe how much better and healthier he looked compared to when he was in the hospital.
Evan had to have a CT of his head and they also had to do what is called a contrasting CT, which requires an IV so that a type of fluid can be put into his veins during the CT. The CT went well and the doctor's appointment went well, but they had a terrible time getting an IV into his arm. It took 3 attempts and 3 different nurses. I remembered the nurse's name so that if we have to do this again, I will be requesting that she do the IV procedure so that it is not so tramatic for Evan (and me!!).
Evan weighed in just over 30#!!! That is 7.5 # heavier than he was 3 or 4 days before he was admitted in the hospital on June 18! Needless to say, he is doing wonderful and is making progess on a daily basis. He is back to walking and running everywhere and saying many more words than he was ever said before! We thank God for our little (maybe not so little anymore) walking, running and talking miracle!!
Evan goes back to the hospital the middle of this month for a tumor clinic appointment where he will have an MRI and then we will meet with several doctors and determine how things are looking on the inside of his little head. I assume that this last appointment we had a couple of days ago and the one coming up will determine just how often we will have to come up to Spokane for his CT's and MRI's.
We thank God for His touch on Evan's life, and will continue to pray that God will completely heal him! Your continued prayers would be much appreciated!
Thank you, everyone, for your many prayers and support that has been shown in so many different ways! God's richest blessings to you!!
Blessings,
David, Trena and Evan
Friday, July 13, 2007
Friday, July 13, 2007
I received this email from Trena just a few minutes ago. Please continue to keep the family in your prayers.
Blessings - Camille
Just thought I would let you know that I made another trip to emergency last night. Evan had a fever. I called his after hours doctor and he said to immediately bring him to the hospital. They wanted to make sure that his spinal fluid did not show any signs of infection. It did not, after a blood test was done to determine that.
So, this makes two emergency trips to the hospital in the middle of the night this week. The first one was on Monday night. Evan was really fussy when he laid down to try to go to sleep, but was fine when he sat or stood up. The hospital thought that his shunt might be plugged, but after a cat scan, it showed that it was fine. He just was being fussy and did not feel good, I guess. We went home and he has slept fine the following nights with the exception for Thursday night, when we had to take him in to emergency for a fever.
I feel like I am kind of numb. After we got done at the hospital just after 5:00 a.m. I drove to the hospital parkade and parked so I could rest a bit before driving. I thought it might be a bit cooler and off the beaten path for Evan and me to rest a bit. At that point, I had already been up for almost 22 hours. I slept off and on until just after 8:00 when there were so many cars coming and going parking in the parkade that I just could not sleep anymore. I am home now, kind of just floating through the house. I am half afraid if I go to sleep now, I will not want to go to bed tonight. I think I will just kind of lay low and try to do some picking up.
I wanted Brandon to shampoo the living room carpet tonight so it would be clean for Sunday. There are so many spots and stains on it.
God is good and He is faithful. In our weaknesses, He gives us His incredible strength.May He be glorified always!
Blessings,
David, Trena & family
Blessings - Camille
Just thought I would let you know that I made another trip to emergency last night. Evan had a fever. I called his after hours doctor and he said to immediately bring him to the hospital. They wanted to make sure that his spinal fluid did not show any signs of infection. It did not, after a blood test was done to determine that.
So, this makes two emergency trips to the hospital in the middle of the night this week. The first one was on Monday night. Evan was really fussy when he laid down to try to go to sleep, but was fine when he sat or stood up. The hospital thought that his shunt might be plugged, but after a cat scan, it showed that it was fine. He just was being fussy and did not feel good, I guess. We went home and he has slept fine the following nights with the exception for Thursday night, when we had to take him in to emergency for a fever.
I feel like I am kind of numb. After we got done at the hospital just after 5:00 a.m. I drove to the hospital parkade and parked so I could rest a bit before driving. I thought it might be a bit cooler and off the beaten path for Evan and me to rest a bit. At that point, I had already been up for almost 22 hours. I slept off and on until just after 8:00 when there were so many cars coming and going parking in the parkade that I just could not sleep anymore. I am home now, kind of just floating through the house. I am half afraid if I go to sleep now, I will not want to go to bed tonight. I think I will just kind of lay low and try to do some picking up.
I wanted Brandon to shampoo the living room carpet tonight so it would be clean for Sunday. There are so many spots and stains on it.
God is good and He is faithful. In our weaknesses, He gives us His incredible strength.May He be glorified always!
Blessings,
David, Trena & family
Sunday, July 8, 2007
Sunday, July 8, 2007
Trena sent this to me yesterday, but I did not have a chance to post it until this morning.
Blessings,
Camille
Just thought I would get you a little update for Evan. I know that you are busy today as David told me that you guys are going to a wedding. Wishing you a wonderful day! I have LOTS to do here, if you know what I mean.
Evan and I made it home yesterday evening. We finally officially left the hospital around 3:00 p.m. It was so nice to drive from the hospital, knowing that I did not have to return the next day!
It was such a blessing to be able to stay in the Ronald McDonald House for the last week. I read a little bit of history on the Ronald McDonald House and there are only 200 in the United States! I felt so blessed that Spokane would have one for me to stay in!!
Times before the Ronald McDonald House I had stayed at the hospital and showered in the showers at the hospital. I had to take all my luggage/bags with me to Evan's room everyday after I awoke and got showered. I usually slept in a different room the following night. When I finally got into the Ronald McDonald House, it was nice to have a permanent place to just leave all my stuff and not worry about it.
We are asking for a major healing for the remaining brain tumor that the surgeon was not able to get. We were told that it is a slow growing tumor, and that we can expect it to come back. At this point, the treatment plan is to just monitor it with frequent MRI's and cat scans. He first check up is the end of this month and then again the middle of August. After that, it will probably be every 8 weeks or so for the first year. Right now, Evan is on seizure medication, but the plan is to wean him off that in the future. That is a normal med for someone who has had any type of brain trauma.
Evan will have to have some therapy, which will begin sometime next week. At this point, today, he is not walking. But if he got graded on effort, it would be an A+! He was doing some crawling this morning and playing with toys. But, his primary focus is that he wants to walk and stand up. With that determination, I am sure it will not be long before he is in the "race" with keeping up with his siblings.
He has had such a sweet spirit about everything and such a determination to not be just laying in bed. We thank God for His touch on Evan's little life and our family! Remember, please continue to pray for Evan's complete healing! We know God is able and we are trusting that Evan's future will glorify God in a magnificent way!
Unless Camille wants to do periodic updates from time to time, please feel free to leave a comment for me to contact you, or you can e-mail Camille and she can get ahold of me to contact you on Evan's progress.
Thank you again for ALL your prayers and support! We truly appreciate everything!
Blessings,
David, Trena & Evan
(Camille's note: I would be happy to continue to give periodic updates on Evan, if this is something you all would appreciate.)
Blessings,
Camille
Just thought I would get you a little update for Evan. I know that you are busy today as David told me that you guys are going to a wedding. Wishing you a wonderful day! I have LOTS to do here, if you know what I mean.
Evan and I made it home yesterday evening. We finally officially left the hospital around 3:00 p.m. It was so nice to drive from the hospital, knowing that I did not have to return the next day!
It was such a blessing to be able to stay in the Ronald McDonald House for the last week. I read a little bit of history on the Ronald McDonald House and there are only 200 in the United States! I felt so blessed that Spokane would have one for me to stay in!!
Times before the Ronald McDonald House I had stayed at the hospital and showered in the showers at the hospital. I had to take all my luggage/bags with me to Evan's room everyday after I awoke and got showered. I usually slept in a different room the following night. When I finally got into the Ronald McDonald House, it was nice to have a permanent place to just leave all my stuff and not worry about it.
We are asking for a major healing for the remaining brain tumor that the surgeon was not able to get. We were told that it is a slow growing tumor, and that we can expect it to come back. At this point, the treatment plan is to just monitor it with frequent MRI's and cat scans. He first check up is the end of this month and then again the middle of August. After that, it will probably be every 8 weeks or so for the first year. Right now, Evan is on seizure medication, but the plan is to wean him off that in the future. That is a normal med for someone who has had any type of brain trauma.
Evan will have to have some therapy, which will begin sometime next week. At this point, today, he is not walking. But if he got graded on effort, it would be an A+! He was doing some crawling this morning and playing with toys. But, his primary focus is that he wants to walk and stand up. With that determination, I am sure it will not be long before he is in the "race" with keeping up with his siblings.
He has had such a sweet spirit about everything and such a determination to not be just laying in bed. We thank God for His touch on Evan's little life and our family! Remember, please continue to pray for Evan's complete healing! We know God is able and we are trusting that Evan's future will glorify God in a magnificent way!
Unless Camille wants to do periodic updates from time to time, please feel free to leave a comment for me to contact you, or you can e-mail Camille and she can get ahold of me to contact you on Evan's progress.
Thank you again for ALL your prayers and support! We truly appreciate everything!
Blessings,
David, Trena & Evan
(Camille's note: I would be happy to continue to give periodic updates on Evan, if this is something you all would appreciate.)
Thursday, July 5, 2007
Thursday, July 5, 2007
Good news coming your way.....
I was told this morning that Evan will be released from Sacred Heart Children's Hospital either tomorrow or Saturday! We are so excited!!!
The therapist was working with him this morning and he was crawling and doing things with his right hand. This seems to be his weak side with his hand, leg and face (smile and eye). It doesn't help him any when he seems to be dominant left handed, so he has had to try a little bit harder to get his right side to work.
Thank you so much for your much needed prayers, support, love and concern! We truly appreciate it!
Blessings,
David, Trena & Evan
I was told this morning that Evan will be released from Sacred Heart Children's Hospital either tomorrow or Saturday! We are so excited!!!
The therapist was working with him this morning and he was crawling and doing things with his right hand. This seems to be his weak side with his hand, leg and face (smile and eye). It doesn't help him any when he seems to be dominant left handed, so he has had to try a little bit harder to get his right side to work.
Thank you so much for your much needed prayers, support, love and concern! We truly appreciate it!
Blessings,
David, Trena & Evan
Wednesday, July 4, 2007
Wednesday, Independence Day, 2007
Independence...for our nation...and for Evan! He has been freed from PICU (Pediatrics Intensive Care Unit)..more below:
Just a little update on our little man! Evan was transferred to the Oncology Unit this morning. He is no longer in Peds ICU!! PTL!! He had a good night last night. The nurse said that he slept all night until 6 this morning and she gave him his bottle. He went back to sleep and was asleep this morning when I got to his room around 8:30. His new room is so much bigger. It has a couch, bathroom/shower, refrigerator, desk, tv, and a couple of chairs. Much more accomadating for visitors.............not so crowded. Although, it would still be nice to be at home. In time................soon.............
Thank you again for uplifting our family and Evan! God is so good, and may He be glorified in ALL that we do and ALL that we are!!
Have a wonderful 4th!!
Blessings,
David, Trena & Evan
Just a little update on our little man! Evan was transferred to the Oncology Unit this morning. He is no longer in Peds ICU!! PTL!! He had a good night last night. The nurse said that he slept all night until 6 this morning and she gave him his bottle. He went back to sleep and was asleep this morning when I got to his room around 8:30. His new room is so much bigger. It has a couch, bathroom/shower, refrigerator, desk, tv, and a couple of chairs. Much more accomadating for visitors.............not so crowded. Although, it would still be nice to be at home. In time................soon.............
Thank you again for uplifting our family and Evan! God is so good, and may He be glorified in ALL that we do and ALL that we are!!
Have a wonderful 4th!!
Blessings,
David, Trena & Evan
Tuesday, July 3, 2007
Tuesday, July 3, 2007 - Evening Report
Time for a laugh.....
Evan has been eating and drinking his goat milk formula/pedialyte bottles pretty well today and he has taken two long naps on his own, one being just a little over two hours long!
One thing that he did today that was kind of cute: He got ahold of the TV remote which also has the NURSE call light and he pushed it!! Not just once, but twice!
The nurses thought was pretty cute, too!
Evan has been eating and drinking his goat milk formula/pedialyte bottles pretty well today and he has taken two long naps on his own, one being just a little over two hours long!
One thing that he did today that was kind of cute: He got ahold of the TV remote which also has the NURSE call light and he pushed it!! Not just once, but twice!
The nurses thought was pretty cute, too!
Tuesday, July 3, 2007 - Morning Report
The morning report is a little late...my apologies!!! However, we were in Spokane today and got to see Mr. Evan! He was still a bit groggy from the surgery, but had a smile or two for Troy, the kids and I! He also shared his plastic banana with me!
Here is the update from Trena:
Hi, Camille~
Well, when I got here this morning, I heard a very upset little boy. He was NOT a happy camper! We have now given him a small bottle of pedialyte and he kept it down, so as I am typing this he is getting his goat milk formula and pedia sure. He was asking for a bottle when I came into the room. I am sure he is really hungry as it has been since midnight of night before last since he has had anything to eat. He is a pretty easy going little boy, for the most part, EXCEPT when one interferes with his "food" !
They took out his stitches yesterday after his surgery and it looks pretty good where they were. When his hair grows back, it will be difficult to see just where his large incision is located.
Since he was pretty fussy last night, the nurse said that they will most likely keep him in ICU for today and try to move him to the Peds Oncology Unit tomorrow. Who knows, though? Maybe after he starts eating, he might be a totally different child and they might just decide to move him on to the Oncology Unit. Time will tell............
My hope and prayer is that we will get to go home very soon!! This "hospital life" is not the greatest, although I don't want to discredit the staff that is here at Children's Sacred Heart, they have been great!!
We continue to press on.........day by day,,,,,,,,,hour by hour..........minute by minute............. breath by breath........... Thank you for your continuing support and prayers!! We feel totally surrounded by these!
Blessings,
David and Trena
Here is the update from Trena:
Hi, Camille~
Well, when I got here this morning, I heard a very upset little boy. He was NOT a happy camper! We have now given him a small bottle of pedialyte and he kept it down, so as I am typing this he is getting his goat milk formula and pedia sure. He was asking for a bottle when I came into the room. I am sure he is really hungry as it has been since midnight of night before last since he has had anything to eat. He is a pretty easy going little boy, for the most part, EXCEPT when one interferes with his "food" !
They took out his stitches yesterday after his surgery and it looks pretty good where they were. When his hair grows back, it will be difficult to see just where his large incision is located.
Since he was pretty fussy last night, the nurse said that they will most likely keep him in ICU for today and try to move him to the Peds Oncology Unit tomorrow. Who knows, though? Maybe after he starts eating, he might be a totally different child and they might just decide to move him on to the Oncology Unit. Time will tell............
My hope and prayer is that we will get to go home very soon!! This "hospital life" is not the greatest, although I don't want to discredit the staff that is here at Children's Sacred Heart, they have been great!!
We continue to press on.........day by day,,,,,,,,,hour by hour..........minute by minute............. breath by breath........... Thank you for your continuing support and prayers!! We feel totally surrounded by these!
Blessings,
David and Trena
Monday, July 2, 2007
Monday, July 2, 2007 - Evening Update
Update from Trena:
Evan is back from his surgery and he is doing fine. He was a bit fussy and crying with a hoarse voice. I held him for a little bit until he settled down and he is now resting peacefully in his bed in the ICU unit.
The doctor/surgeon said that the surgery went really well. They also took out his stitches from his surgery 12 days ago. I am so thankful for the many wonderful things that they can do now with so many life threatening situations AND more than that, I am so thankful for the many prayers and support that has been sent Heaven/ward on his and our behalf. God is faithful and we are being faithful!
We have learned much and still have much to learn. Sometimes it can seem so overwhelming with everything, but one day at a time..........one hour at a time.........one minute at a time....... one breath at a time...........
Again, we thank all of you for your support, care and prayers.
Blessings to you all.......
Love, David and Trena
Evan is back from his surgery and he is doing fine. He was a bit fussy and crying with a hoarse voice. I held him for a little bit until he settled down and he is now resting peacefully in his bed in the ICU unit.
The doctor/surgeon said that the surgery went really well. They also took out his stitches from his surgery 12 days ago. I am so thankful for the many wonderful things that they can do now with so many life threatening situations AND more than that, I am so thankful for the many prayers and support that has been sent Heaven/ward on his and our behalf. God is faithful and we are being faithful!
We have learned much and still have much to learn. Sometimes it can seem so overwhelming with everything, but one day at a time..........one hour at a time.........one minute at a time....... one breath at a time...........
Again, we thank all of you for your support, care and prayers.
Blessings to you all.......
Love, David and Trena
Monday, July 2, 2007
Update from Trena:
Evan's surgery is set for sometime late this afternoon. I don't have an exact time, we have been told several different times, but nothing is set in concrete. I do know that he is 4th on the surgery schedule for today with his surgeon, so I imagine it just depends on how the surgeries go for the ones before Evan.
Evan has been a bit on the fussy side today. I am sure a lot of this is due to the fact that he has not had anything to eat since last night. His little tummy has to be empty for the surgery. He has asked for a banana.
Thank you for your continued support and prayers. We feel them constantly! God is faithful and may He be glorified through this whole ordeal and always!!
Love, Trena
Evan's surgery is set for sometime late this afternoon. I don't have an exact time, we have been told several different times, but nothing is set in concrete. I do know that he is 4th on the surgery schedule for today with his surgeon, so I imagine it just depends on how the surgeries go for the ones before Evan.
Evan has been a bit on the fussy side today. I am sure a lot of this is due to the fact that he has not had anything to eat since last night. His little tummy has to be empty for the surgery. He has asked for a banana.
Thank you for your continued support and prayers. We feel them constantly! God is faithful and may He be glorified through this whole ordeal and always!!
Love, Trena
Sunday, July 1, 2007
Sunday, July 1, 2007
Trena sent the following update:
If all goes well after the surgery this coming week...............and if there is not any infections..........................and if, if, if,if.........one of the doctors told me yesterday that we might be able to go back home by the end of next week. That would be so nice. I miss being home so much and when the children were here at the hospital on Friday evening, a lot of them really cried and cried when I stayed at the hospital and David took them all home again. It was VERY hard for me and I know it was hard for them, too.
Evan's appetite continues to be back to what he was normally eating (and that was a lot!!). He will have to start that all over again when he has surgery and will not be able to have food for a day or so again.
Evan's sodium level is now consistantly in the normal range, the last one being 136. He is still producing a fair amount of excess CSF, so surgery, at this point, is imminent. He still has a bit of a crooked smile, but that's ok. That's our Evan, whether it be temporary or permanent, it's ok!
I am now staying at the Ronald McDonald house about 6 blocks or so from the hospital. I really don't like being so far away from the hospital at night, but it is nice to not have to tote my luggage back and forth from my sleeping room to Evan's ICU room everyday.
The staff here in this unit and the doctors have been superb!! They have answered my many questions over and over again and some have even given hugs and support when I fell apart a couple of times, just from the stress of not knowing. Above all, God has been faithful and He has been my strength to cope with each minute of each day................like one of my precious friends told me.........one day at a time.........one breath at a time............and sometimes that it just what it is!!
I really appreciate the many comments and prayers that have been sent our way! They have been so encouraging and I go back and re-read them several times...........again and again. We are abundantly blessed with so many caring friends! My cup overflows!!
Blessings, Trena
If all goes well after the surgery this coming week...............and if there is not any infections..........................and if, if, if,if.........one of the doctors told me yesterday that we might be able to go back home by the end of next week. That would be so nice. I miss being home so much and when the children were here at the hospital on Friday evening, a lot of them really cried and cried when I stayed at the hospital and David took them all home again. It was VERY hard for me and I know it was hard for them, too.
Evan's appetite continues to be back to what he was normally eating (and that was a lot!!). He will have to start that all over again when he has surgery and will not be able to have food for a day or so again.
Evan's sodium level is now consistantly in the normal range, the last one being 136. He is still producing a fair amount of excess CSF, so surgery, at this point, is imminent. He still has a bit of a crooked smile, but that's ok. That's our Evan, whether it be temporary or permanent, it's ok!
I am now staying at the Ronald McDonald house about 6 blocks or so from the hospital. I really don't like being so far away from the hospital at night, but it is nice to not have to tote my luggage back and forth from my sleeping room to Evan's ICU room everyday.
The staff here in this unit and the doctors have been superb!! They have answered my many questions over and over again and some have even given hugs and support when I fell apart a couple of times, just from the stress of not knowing. Above all, God has been faithful and He has been my strength to cope with each minute of each day................like one of my precious friends told me.........one day at a time.........one breath at a time............and sometimes that it just what it is!!
I really appreciate the many comments and prayers that have been sent our way! They have been so encouraging and I go back and re-read them several times...........again and again. We are abundantly blessed with so many caring friends! My cup overflows!!
Blessings, Trena
Friday, June 29, 2007
Friday, June 29, 2007
Evan continues to improve every day!
This morning he had french toast and 'mush' (Dad's term).
His sodium level continues to rise (good thing) and is up to 138...within the normal range now!
The protein level has decreased tremendously (another good thing), and the CSF is now clear...which is wonderful!
He is now filling out (Dad says he's getting 'fat'...lol!), which is great, too. He is behaving like the 21-month-old that he is, and is returning to normal sleep patterns!
Because of lack of activity, they had to give him a suppository to stimulate a BM, which worked VERY WELL, from what I heard...lol!
The surgery to place the shunt, if that still is necessary, will happen sometime next week.
For now they are just keeping a watch on the amount of fluid his body is producing.
All in all, he has had, and continues to have, great days! Please continue to bathe him in prayer!!!
Have a great weekend -
Camille
PS - Our family is camping this weekend, so we will not have internet access...which means no updates over the weekend (at least for Saturday). When we return on Sunday, I'll make sure to get a full update and post Sunday evening.
Thanks again...and blessings to you all!
This morning he had french toast and 'mush' (Dad's term).
His sodium level continues to rise (good thing) and is up to 138...within the normal range now!
The protein level has decreased tremendously (another good thing), and the CSF is now clear...which is wonderful!
He is now filling out (Dad says he's getting 'fat'...lol!), which is great, too. He is behaving like the 21-month-old that he is, and is returning to normal sleep patterns!
Because of lack of activity, they had to give him a suppository to stimulate a BM, which worked VERY WELL, from what I heard...lol!
The surgery to place the shunt, if that still is necessary, will happen sometime next week.
For now they are just keeping a watch on the amount of fluid his body is producing.
All in all, he has had, and continues to have, great days! Please continue to bathe him in prayer!!!
Have a great weekend -
Camille
PS - Our family is camping this weekend, so we will not have internet access...which means no updates over the weekend (at least for Saturday). When we return on Sunday, I'll make sure to get a full update and post Sunday evening.
Thanks again...and blessings to you all!
Thursday, June 28, 2007
Thursday, June 28, 2007
Good morning ...er, I guess afternoon!
The report this morning still continues to be filled with good news!!!
Evan was weighed this morning, and topped out the scales at 25 lbs. 2 oz...which is the most he has weighed in his life! As many of you know, the first sign that something was not right is that Evan was not only not gaining weight, but had started losing weight! So how exciting to see that he is now packing on the pounds (or at least ounces *smile*)!!!
His sodium level last night was 122, and this morning it was up to 127...which is quickly moving into the 'normal range'! Please continue to pray that his sodium will continue to climb until it reaches the normal range and then will plateau.
I do not believe that they have checked the protein level in the CSF, but from the color of the fluid which is draining (which has decreased..another good sign), it is almost clear...which is a great sign that there is not an excess of protein in it. Remember, it was yellowish-orange (protein), now it is almost clear!
David is with his little man today, which I am sure pleased Evan to have Daddy there!
He (Evan) is still keeping down everything he eats, including the scrambled eggs he had for breakfast.
Please continue to pray for Evan, and I will post again as more news rolls in.
Oh, one other update, he had a bath last night, and Tami said he looked wonderful, and tolerated it well. He had on his new jammies and just looked very handsome. He was also being a typical 21 month old, pulling at the various tubes and wires that are still connected to him...which is troublesome for the caregivers, but awesome for his prognosis because it means he is acting in a way that a 21 month old would act..if that makes sense.
Thanks again, on behalf of the family, for all the wonderful comments and all the prayers that are going up for this family. Please keep up the good work...the fruit it has beared has been very good!
Blessings -
Camille
The report this morning still continues to be filled with good news!!!
Evan was weighed this morning, and topped out the scales at 25 lbs. 2 oz...which is the most he has weighed in his life! As many of you know, the first sign that something was not right is that Evan was not only not gaining weight, but had started losing weight! So how exciting to see that he is now packing on the pounds (or at least ounces *smile*)!!!
His sodium level last night was 122, and this morning it was up to 127...which is quickly moving into the 'normal range'! Please continue to pray that his sodium will continue to climb until it reaches the normal range and then will plateau.
I do not believe that they have checked the protein level in the CSF, but from the color of the fluid which is draining (which has decreased..another good sign), it is almost clear...which is a great sign that there is not an excess of protein in it. Remember, it was yellowish-orange (protein), now it is almost clear!
David is with his little man today, which I am sure pleased Evan to have Daddy there!
He (Evan) is still keeping down everything he eats, including the scrambled eggs he had for breakfast.
Please continue to pray for Evan, and I will post again as more news rolls in.
Oh, one other update, he had a bath last night, and Tami said he looked wonderful, and tolerated it well. He had on his new jammies and just looked very handsome. He was also being a typical 21 month old, pulling at the various tubes and wires that are still connected to him...which is troublesome for the caregivers, but awesome for his prognosis because it means he is acting in a way that a 21 month old would act..if that makes sense.
Thanks again, on behalf of the family, for all the wonderful comments and all the prayers that are going up for this family. Please keep up the good work...the fruit it has beared has been very good!
Blessings -
Camille
Wednesday, June 27, 2007
Wednesday, June 27, 2007
Hi all...
Sorry for the delay in the update today! We were in Wenatchee on family errands.
Okay..now for Evan....
Today has been a fantastic day for our little guy!! Can I hear a 'hallelujah'???
The sodium level, while still low, in on the rise! Also, the CSF is almost clear, which means the protein level has dropped. These are both beyond wonderful!
More good news, you say?
He still continues to recognize familiar faces and objects! Earlier, he said 'nanna' when a plastic banana was held up! This seems small, but it is so grand! It's an excellent sign, as far as the brain goes, that he remembers people and objects! (These are my words, and I'm not doing the report justice tonight..lol!)
He has had a banana, some mashed potatoes and a bottle over the course of the day, and he has kept it all down!
All in all, he had a superb day...which is wonderful for Evan and for his Mom!!!
Your prayers are working! Our God is so wonderful! Please keep up the intercession on Evan's (and the Gimmaka's) behalf!
Have a great evening -
Camille
PS - A great big thank you to everyone, and especially to those that have sent such encouraging words to Trena (and to Evan). I have not spoken to Trena about them, but I have been touched by them, so I can only imagine what they mean to her! Thanks again!
Sorry for the delay in the update today! We were in Wenatchee on family errands.
Okay..now for Evan....
Today has been a fantastic day for our little guy!! Can I hear a 'hallelujah'???
The sodium level, while still low, in on the rise! Also, the CSF is almost clear, which means the protein level has dropped. These are both beyond wonderful!
More good news, you say?
He still continues to recognize familiar faces and objects! Earlier, he said 'nanna' when a plastic banana was held up! This seems small, but it is so grand! It's an excellent sign, as far as the brain goes, that he remembers people and objects! (These are my words, and I'm not doing the report justice tonight..lol!)
He has had a banana, some mashed potatoes and a bottle over the course of the day, and he has kept it all down!
All in all, he had a superb day...which is wonderful for Evan and for his Mom!!!
Your prayers are working! Our God is so wonderful! Please keep up the intercession on Evan's (and the Gimmaka's) behalf!
Have a great evening -
Camille
PS - A great big thank you to everyone, and especially to those that have sent such encouraging words to Trena (and to Evan). I have not spoken to Trena about them, but I have been touched by them, so I can only imagine what they mean to her! Thanks again!
Tuesday, June 26, 2007
Tuesday, June 26, 2007 - Evening Update
Tami called me this evening with an update on Evan, and things seem to be a bit better for our little man! Praise God...and bless all of you for your prayers!
The rotation doctor was very pleased with Evan's progress this evening. They have changed his anti-seizure medication and are just giving him Tylenol (regular) for any pain...Praise the Lord!!!
The doctor said he believes that Evan is doing much, much better. He is sleeping peacefully, and will adjust himself in the bed to get in a more comfortable position...which is a very, very good sign. Tami said he also had an itch on his leg, and lifted his leg to scratch it...all this while sleeping. This is another good sign.
The doctor said, 'When he starts to pick his nose, we'll know things are okay.'...lol! So, I'm sure you thought you would NEVER have anyone ask for prayers for their child to pick there nose...and this is just another reason why we should never say 'never' *smile*!
Tami said that Trena is doing much better tonight after such a dramatic night and morning.
Oh, one more note, the fluid that is being drained from his brain is looking more 'normal'. It had been a yellowish-orange color, now it is more a light yellow...near to clear, which is AWESOME!!
Evan WILL NOT BE HAVING SURGERY tomorrow (Wednesday). They are still keeping a watch on his sodium level and the protein level in the CSF.
I'm sure I don't need to ask you to continue to pray, but I will. Please pray, pray, pray!
Also, the encouraging notes to Trena are a lift to her spirit, and are a balm to Evan as well. You know what they say, 'When Momma is happy, everyone is happy!'. Please continue to send positive notes of encouragement to Evan and the family. They are read every day, and I'm sure she shares them with Evan as well.
This blog is not only for you all to be kept abreast of the progress Evan is making, but it is also an avenue to communicate with Evan and his family on a daily basis. So, when posting, please stay positive and offer your prayers!!!
Thanks again and have a wonderful evening!!!
On behalf of the Gimmaka Family -
Camille
The rotation doctor was very pleased with Evan's progress this evening. They have changed his anti-seizure medication and are just giving him Tylenol (regular) for any pain...Praise the Lord!!!
The doctor said he believes that Evan is doing much, much better. He is sleeping peacefully, and will adjust himself in the bed to get in a more comfortable position...which is a very, very good sign. Tami said he also had an itch on his leg, and lifted his leg to scratch it...all this while sleeping. This is another good sign.
The doctor said, 'When he starts to pick his nose, we'll know things are okay.'...lol! So, I'm sure you thought you would NEVER have anyone ask for prayers for their child to pick there nose...and this is just another reason why we should never say 'never' *smile*!
Tami said that Trena is doing much better tonight after such a dramatic night and morning.
Oh, one more note, the fluid that is being drained from his brain is looking more 'normal'. It had been a yellowish-orange color, now it is more a light yellow...near to clear, which is AWESOME!!
Evan WILL NOT BE HAVING SURGERY tomorrow (Wednesday). They are still keeping a watch on his sodium level and the protein level in the CSF.
I'm sure I don't need to ask you to continue to pray, but I will. Please pray, pray, pray!
Also, the encouraging notes to Trena are a lift to her spirit, and are a balm to Evan as well. You know what they say, 'When Momma is happy, everyone is happy!'. Please continue to send positive notes of encouragement to Evan and the family. They are read every day, and I'm sure she shares them with Evan as well.
This blog is not only for you all to be kept abreast of the progress Evan is making, but it is also an avenue to communicate with Evan and his family on a daily basis. So, when posting, please stay positive and offer your prayers!!!
Thanks again and have a wonderful evening!!!
On behalf of the Gimmaka Family -
Camille
Tuesday, June 26, 2007 @ 12:51 pm
Just got off the phone with Trena for today's update:
Evan had another seizure that lasted about 4 minutes. He turned blue, so they had to give him some oxygen. He also threw up again this morning.
Along with the protein level in CSF fluid being too high, it appears his sodium level is too low. Both of these conditions are contraindcative to surgery. The decreased sodium level could be the cause of the seizures.
He is resting fitfully now.
Please bathe Evan and Trena in prayer. She sounded tired, and on the verge of tears, which is understandable.
I will post more later if there are any changes...until then, pray, pray, pray.
Blessings to you all -
Camille
Evan had another seizure that lasted about 4 minutes. He turned blue, so they had to give him some oxygen. He also threw up again this morning.
Along with the protein level in CSF fluid being too high, it appears his sodium level is too low. Both of these conditions are contraindcative to surgery. The decreased sodium level could be the cause of the seizures.
He is resting fitfully now.
Please bathe Evan and Trena in prayer. She sounded tired, and on the verge of tears, which is understandable.
I will post more later if there are any changes...until then, pray, pray, pray.
Blessings to you all -
Camille
Monday, June 25, 2007
Pictures, pictures, pictures...all taken Monday, June 25, 2007
A little bit of physical therapy, bubbles and puppies..gotta love it!
(June 25 @ 2:30 pm)
This lady is a crack up!!! (Can you hear my giggle?)
(June 25 @ 2:30 pm)
Love my puppy, my puppy loves me!
(June 25 @ 2:30 pm)
Mom and Evan just hanging out
(June 25, about 6:30 pm)
Playing a game of 'Get that foot!'
(June 25, about 6:30 pm)
Say 'Cheese', Mom!
Say 'Cheese', Mom! (Evan's turn to take a picture!)
Monday, June 25, 2007 @ 10:26 pm
We (Victoria and I) left Evan's room around 8:15 pm this evening. Just before we left, the night nurse came in to give Evan morphine and an antiemetic (anti-nausea medication). He seemed to be okay, so not real sure why she gave him the meds.
Shortly after we left, they gave him a 4 oz. bottle of a mixture of formula, pedialight and pediasure which he kept down for about an hour, and then threw it all up.
Tami called me around 9:40 pm to say that Evan had started seizuring (shaky and crossing of eyes, etc), and had been doing so for about 20 to 25 minutes. The nurses came in and gave him some Ativan, and it stopped his seizures and now he is sleeping.
I am on the phone with Tami right now, and she said the seizures lasted for about an hour...he was having them back to back. If in a couple of hours he has more seizures, they will give half the dose of Ativan they gave him initially. He is sleeping peacefully now. The first real sleep since his surgery.
Trena is staying in a room at the hospital tonight, so she will be close by.
Please continue to pray!
Shortly after we left, they gave him a 4 oz. bottle of a mixture of formula, pedialight and pediasure which he kept down for about an hour, and then threw it all up.
Tami called me around 9:40 pm to say that Evan had started seizuring (shaky and crossing of eyes, etc), and had been doing so for about 20 to 25 minutes. The nurses came in and gave him some Ativan, and it stopped his seizures and now he is sleeping.
I am on the phone with Tami right now, and she said the seizures lasted for about an hour...he was having them back to back. If in a couple of hours he has more seizures, they will give half the dose of Ativan they gave him initially. He is sleeping peacefully now. The first real sleep since his surgery.
Trena is staying in a room at the hospital tonight, so she will be close by.
Please continue to pray!
Monday, June 25, 2007 @ 6:46 pm
Victoria and I came up to Spokane today to visit with Trena and Evan. He looks considerably better than we thought he would. However, Trena said today he is not looking as well as he has been. When we first arrived, he was having a bit of physical therapy and he was smiling and even gave a little laugh for the nurse. Although he will look at you, there doesn't seem to be recognition in his eyes. This could be from the lethargy he is experiencing though, which is explained below.
I am in his room now, and he is resting. The nurse just came in with a report. Evan was taken down for another MRI to check his PIC line, which is a central line through which medications can be given. It is not positioned the way they would like it to be, however it will suffice for now.
She said that the protein level in his CSF (cerebral-spinal fluid) is too high for the surgery. The protein can clog the shunt. They are going to test the fluid again tomorrow morning for the protein level. The cause of the increased protein from the tumor being incised during the surgery.
Evan is also being weaned off his steroid medication. The nurse said this could be the cause of some of the lethargy he is experiencing.
He has had two 8 oz. bottles of Pedialight today which he has been able to keep down. Praise God!!! The nurse said they may try a 4 oz. bottle of his formula, but she is still undecided on that.
Please check back later, as we will update with some pictures. Trena had some developed from the beginning (at the emergency room) until pictures that we took today.
Continue to pray for Evan and Trena.
Trena seems to be holding up okay, but I think her grief, for lack of a better word, is just below the surface. It is hard for her to take so many phone calls and have to live through the updates over and over again.
Specific prayers:
1. The fluid in
Evan's brain would be reabsorbed and that his body would again function as it should with the circulating and reabsorption of the CSF fluid.
2. Evan would become more responsive and that the lethargy would pass.
3. Evan would again recognize familiar faces and respond appropriately.
4. Trena would find comfort in the progress that Evan is making and to cast all her worries on the Lord.
5. Prayers for the family in general and for the support people in Trena and David's life.
Remember...check for picture updates later tonight. When we get home I will post the ones from our camera, and it will probably be either late tonight or tomorrow evening when we get the scanned pictures posted.
Blessings to you all -
Camille
I am in his room now, and he is resting. The nurse just came in with a report. Evan was taken down for another MRI to check his PIC line, which is a central line through which medications can be given. It is not positioned the way they would like it to be, however it will suffice for now.
She said that the protein level in his CSF (cerebral-spinal fluid) is too high for the surgery. The protein can clog the shunt. They are going to test the fluid again tomorrow morning for the protein level. The cause of the increased protein from the tumor being incised during the surgery.
Evan is also being weaned off his steroid medication. The nurse said this could be the cause of some of the lethargy he is experiencing.
He has had two 8 oz. bottles of Pedialight today which he has been able to keep down. Praise God!!! The nurse said they may try a 4 oz. bottle of his formula, but she is still undecided on that.
Please check back later, as we will update with some pictures. Trena had some developed from the beginning (at the emergency room) until pictures that we took today.
Continue to pray for Evan and Trena.
Trena seems to be holding up okay, but I think her grief, for lack of a better word, is just below the surface. It is hard for her to take so many phone calls and have to live through the updates over and over again.
Specific prayers:
1. The fluid in
Evan's brain would be reabsorbed and that his body would again function as it should with the circulating and reabsorption of the CSF fluid.
2. Evan would become more responsive and that the lethargy would pass.
3. Evan would again recognize familiar faces and respond appropriately.
4. Trena would find comfort in the progress that Evan is making and to cast all her worries on the Lord.
5. Prayers for the family in general and for the support people in Trena and David's life.
Remember...check for picture updates later tonight. When we get home I will post the ones from our camera, and it will probably be either late tonight or tomorrow evening when we get the scanned pictures posted.
Blessings to you all -
Camille
Monday, June 25, 2007
Update from Tami:
Evan is not doing well today. He was awake and throwing up all night. The pressure on his brain is increasing, and the fluid does not seem to be reabsorbing as it should. The higher the pressure they apply to assist the body the better. They had it at 15, and tried increasing it 20, but eventually had to decrease it to 5 today, which is not good.
He is scheduled for another CAT scan today so they can determine what is going on. The family is unsure when the CAT scan will be, however.
Please continue to pray for little Evan.
Evan is not doing well today. He was awake and throwing up all night. The pressure on his brain is increasing, and the fluid does not seem to be reabsorbing as it should. The higher the pressure they apply to assist the body the better. They had it at 15, and tried increasing it 20, but eventually had to decrease it to 5 today, which is not good.
He is scheduled for another CAT scan today so they can determine what is going on. The family is unsure when the CAT scan will be, however.
Please continue to pray for little Evan.
Sunday, June 24, 2007
Sunday Evening, June 24, 2007
Evan just vomited his dinner and 7 oz. bottle that he ate for dinner tonight. I don't know just how much of a set back this is, but I am sure it is not the best. Evan, at times, seems not to be able to focus with both eyes. Time will tell.............Right now, he is sitting up in bed, propped by pillows and playing with some small toys. He is smiling and we even heard a small giggle, which is encouraging. God is faithful and we are so thankful!!
Prayer Update:
Please remember to keep praying that Evan's body will reabsorb the extra fluid so that he will not have to have another surgery next week.
Also, continue to pray for David, Trena and the rest of their family.
Have a great night!
Prayer Update:
Please remember to keep praying that Evan's body will reabsorb the extra fluid so that he will not have to have another surgery next week.
Also, continue to pray for David, Trena and the rest of their family.
Have a great night!
Sunday, June 24, 2007 - Update
Hello. everyone~
When we got to the hospital this morning Evan was awake and laying peacefully in his hospital crib. He hardly ever cries. His eyes looked even better today and his grip on my fingers was a little tighter. He seems to be focusing much better, although there is not that sparkle in his eyes, like there was before he had surgery.
When Brently and Kimberly came in this morning to see Evan he responded so well to them. He was starting to light up like he did before his surgery. The nurse and I got to see smiles that we have not seen since he had surgery. I am thinking that it might be good therapy for Evan to have them up here on a regular basis. He tried to reach for their faces and tried to grasp their hands and fingers.
Yesterday afternoon Tami brought their youngest daughter, Tori, up with her to Evan's room. She was so good and when she was awake Tami held her by Evan's bed. He was trying to reach for her face and grab at her. He was still a bit trembly and shakey but that didn't seem to stop him from trying. It will be this type of persistance that will give him a quicker recovery.
Right now, he is getting what they call a "pic" line put into his little arm that goes directly into one of his main arteries from his heart. This will make it much easier to get labs on him and administer his meds without having to poke him so many times.
He has had IV's in both of his arms and both of his feet/ankles. Because of his fair skin, those temporary IV's have basically "blown" out. He did have a little bit of physical therapy yesterday with the therapist. She sat him up slowly and then sat him on her lap on the floor and then had him stand on his feet. She did hang on to him the entire time, but she was quite impressed with his abilities and progress so far.
I heard that a couple of nurses have commented about the "peace" that they feel in Evan's room. I think we all know just where that peace is coming from, don't we?? I am SOOOO thankful for the many prayers, love, concern, tears, hugs (both physical and over the phone!), phone calls, text messages, cards, flowers, balloons and e-mails that have been sent our way.
The nurses and doctors have been absolutely fabulous!! They are so understanding and caring! They don't tire of my endless and "repeated" questions, for which I am very thankful, and they always have a smile.
We feel and covet your many prayers that have continued to sustain us. Thank you so much! We are hopeful and expecting mighty miracles that will ultimately glorify our Heavenly Father and Saviour, Jesus Christ. He is so worthy to be praised!
Love,
David and Trena
When we got to the hospital this morning Evan was awake and laying peacefully in his hospital crib. He hardly ever cries. His eyes looked even better today and his grip on my fingers was a little tighter. He seems to be focusing much better, although there is not that sparkle in his eyes, like there was before he had surgery.
When Brently and Kimberly came in this morning to see Evan he responded so well to them. He was starting to light up like he did before his surgery. The nurse and I got to see smiles that we have not seen since he had surgery. I am thinking that it might be good therapy for Evan to have them up here on a regular basis. He tried to reach for their faces and tried to grasp their hands and fingers.
Yesterday afternoon Tami brought their youngest daughter, Tori, up with her to Evan's room. She was so good and when she was awake Tami held her by Evan's bed. He was trying to reach for her face and grab at her. He was still a bit trembly and shakey but that didn't seem to stop him from trying. It will be this type of persistance that will give him a quicker recovery.
Right now, he is getting what they call a "pic" line put into his little arm that goes directly into one of his main arteries from his heart. This will make it much easier to get labs on him and administer his meds without having to poke him so many times.
He has had IV's in both of his arms and both of his feet/ankles. Because of his fair skin, those temporary IV's have basically "blown" out. He did have a little bit of physical therapy yesterday with the therapist. She sat him up slowly and then sat him on her lap on the floor and then had him stand on his feet. She did hang on to him the entire time, but she was quite impressed with his abilities and progress so far.
I heard that a couple of nurses have commented about the "peace" that they feel in Evan's room. I think we all know just where that peace is coming from, don't we?? I am SOOOO thankful for the many prayers, love, concern, tears, hugs (both physical and over the phone!), phone calls, text messages, cards, flowers, balloons and e-mails that have been sent our way.
The nurses and doctors have been absolutely fabulous!! They are so understanding and caring! They don't tire of my endless and "repeated" questions, for which I am very thankful, and they always have a smile.
We feel and covet your many prayers that have continued to sustain us. Thank you so much! We are hopeful and expecting mighty miracles that will ultimately glorify our Heavenly Father and Saviour, Jesus Christ. He is so worthy to be praised!
Love,
David and Trena
Saturday, June 23, 2007
Saturday, June 23 @ 11:13 am
They removed Evan's head dressing today. The doctor says everything looks really good. Trena was encouraged by this, but she was a little dismayed at the size of the incision; however, it does not seem to bother Evan. Evan has not slept in 24 hours, probably an after effect of being sedated for so long. He is looking around and is aware of his surroundings, but does not seem to focus on people yet. His eyes, however, are no longer glassy. His fine motor skills (hands, etc) seem to be a little effected (ie, he is shaky). They do not know whether this is a side effect of the drugs or a complication from surgery. Time will tell.
He was given Pedialight to see if he would keep anything down (yesterday), which he did not. This morning, he drank 6 to 8 oz. of Pediasure and kept most of that down. The first word out of his mouth after waking up (and the last word before going into surgery) was 'nanna'...which meant he wanted a banana. So today, they gave him some baby food banana. He had to be fed in 3 bite increments, 5 minutes apart, so that he could keep it down, which he did.
Trena is still at the hospital. David is at home taking care of chores there. The other children are doing well, no one is sick at home, which is a blessing! Trena says everyone is counting the days to when they can all be back together again.
Please continue to pray for Evan, that his recovery will be swift and full.
Specific prayer requests:
Please pray that his body will continue to absorb the fluid around his brain so that he will not have to have a shunt placed surgically on Wednesday. If he does not have surgery on Wednesday, he could be home as early as the end of next week.
He was given Pedialight to see if he would keep anything down (yesterday), which he did not. This morning, he drank 6 to 8 oz. of Pediasure and kept most of that down. The first word out of his mouth after waking up (and the last word before going into surgery) was 'nanna'...which meant he wanted a banana. So today, they gave him some baby food banana. He had to be fed in 3 bite increments, 5 minutes apart, so that he could keep it down, which he did.
Trena is still at the hospital. David is at home taking care of chores there. The other children are doing well, no one is sick at home, which is a blessing! Trena says everyone is counting the days to when they can all be back together again.
Please continue to pray for Evan, that his recovery will be swift and full.
Specific prayer requests:
Please pray that his body will continue to absorb the fluid around his brain so that he will not have to have a shunt placed surgically on Wednesday. If he does not have surgery on Wednesday, he could be home as early as the end of next week.
Email from Trena - Friday, June 22, 2007
Hi, everyone~
Evan is stabilized and is off his breathing respirator this afternoon. He is holding his own but still can not move his head very much. Not that he does not try to but they don't want him to do that this soon.
The MRI taken this morning showed that the surgery yesterday got about 95% of the tumor. The pathology report, that will come back in 10-14 days, will determine if it is malignant or not.
Our greatest prayer request, at this point, is that his little body will take care of the extra brain fluid so that he does not have to have surgery next week to put a shunt in. This will be determined in the next few days and if he has to have one put in, the surgery for that will be on Wednesday, I think the date is the 27th.
Tami is here with me right now. Tanna left this morning and so did Don and Trish. They stayed to see what the MRI report showed and then headed back to their homes. We are so blessed to have so many caring and loving people that have prayed and prayed for us. Believe me, we feel your prayers and know that God is working.
In a sort of way, I feel like I am reliving our house fire tradegy of 4 years ago that happened the 30th of this month. Tami and Tanna were there being such a wonderful support for me when all I could do was cry 4 years ago, and they have stepped up once again. What a blessing they have been!
Thank you again, everyone for your many prayers and continued prayers and support! We love you and thank God for each of you!!
Blessings, David and Trena
P.S. For those of you who might not be aware of this situation, I will give you a quick run down. Monday, Evan (our 21 month old son) was diagnosed with a very large brain tumor, which was surgically removed yesterday after a 5 hr. 20 min. surgery at Sacred Heart Children's Hospital. The tumor was the size of a baseball that was removed.
Evan is stabilized and is off his breathing respirator this afternoon. He is holding his own but still can not move his head very much. Not that he does not try to but they don't want him to do that this soon.
The MRI taken this morning showed that the surgery yesterday got about 95% of the tumor. The pathology report, that will come back in 10-14 days, will determine if it is malignant or not.
Our greatest prayer request, at this point, is that his little body will take care of the extra brain fluid so that he does not have to have surgery next week to put a shunt in. This will be determined in the next few days and if he has to have one put in, the surgery for that will be on Wednesday, I think the date is the 27th.
Tami is here with me right now. Tanna left this morning and so did Don and Trish. They stayed to see what the MRI report showed and then headed back to their homes. We are so blessed to have so many caring and loving people that have prayed and prayed for us. Believe me, we feel your prayers and know that God is working.
In a sort of way, I feel like I am reliving our house fire tradegy of 4 years ago that happened the 30th of this month. Tami and Tanna were there being such a wonderful support for me when all I could do was cry 4 years ago, and they have stepped up once again. What a blessing they have been!
Thank you again, everyone for your many prayers and continued prayers and support! We love you and thank God for each of you!!
Blessings, David and Trena
P.S. For those of you who might not be aware of this situation, I will give you a quick run down. Monday, Evan (our 21 month old son) was diagnosed with a very large brain tumor, which was surgically removed yesterday after a 5 hr. 20 min. surgery at Sacred Heart Children's Hospital. The tumor was the size of a baseball that was removed.
Evan before surgery.
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