Hi all...
Trena called me a bit ago with an update on Evan's condition.
He was scheduled for an MRI today, and the results weren't as expected. They had to adjust his shunt, and the tumor is 'growing more than anticipated' according to the doctor. Evan will have to have a CAT scan next week for a more thorough evaluation of what is going on. He has been a bit more cranky than usual, Trena said, and has not been getting a restful night's sleep.
Please continue to lift him and the family in your prayers!!!
I will update again some time next.
Until then, may His blessings rain upon you -
Camille
Wednesday, September 19, 2007
Thursday, August 16, 2007
Thursday, August 16, 2007 - Update
We went to Spokane Children's Hospital on Tuesday for Evan's first MRI since he was discharged from the hospital. Unfortunately, the MRI was a failure. Evan's body did not properly respond to the sedation drugs they administered to him. So........since he was not completely sedated they could not do the MRI. He will have to have another one with complete sedation in the next week or two. They are trying to get it scheduled and then they will call me with the date and time.
We did see his nuerosurgeon and oncologist and they thought he looked great. It looks like he will have to have MRI's every 3 months for the first year. We are still praying and believing for a complete healing! God is faithful and we are so thankful that Evan is doing so well.
I gave him his first hair cut since he was hospitalized in June. His hair had grown considerably since 1/2 of his head was shaved for his surgery. If you did not know about his surgery, you would have to look really close to see his scar and shunt.
He is a busy little boy; walking, running and talking more and more everyday. He loves to open drawers and empty their contents.
Thank you again for all your prayers!
Blessings, David and Trena
We did see his nuerosurgeon and oncologist and they thought he looked great. It looks like he will have to have MRI's every 3 months for the first year. We are still praying and believing for a complete healing! God is faithful and we are so thankful that Evan is doing so well.
I gave him his first hair cut since he was hospitalized in June. His hair had grown considerably since 1/2 of his head was shaved for his surgery. If you did not know about his surgery, you would have to look really close to see his scar and shunt.
He is a busy little boy; walking, running and talking more and more everyday. He loves to open drawers and empty their contents.
Thank you again for all your prayers!
Blessings, David and Trena
Sunday, August 5, 2007
Sunday, August 5, 2007
Evan had his first check up appointment since he was discharged from the hospital on July 6th. His appointment was with his neurosurgeon and also to do a head CT to check the shunt that he was in his head.
Some of the nurses recognized him at the hospital and could not believe how much better and healthier he looked compared to when he was in the hospital.
Evan had to have a CT of his head and they also had to do what is called a contrasting CT, which requires an IV so that a type of fluid can be put into his veins during the CT. The CT went well and the doctor's appointment went well, but they had a terrible time getting an IV into his arm. It took 3 attempts and 3 different nurses. I remembered the nurse's name so that if we have to do this again, I will be requesting that she do the IV procedure so that it is not so tramatic for Evan (and me!!).
Evan weighed in just over 30#!!! That is 7.5 # heavier than he was 3 or 4 days before he was admitted in the hospital on June 18! Needless to say, he is doing wonderful and is making progess on a daily basis. He is back to walking and running everywhere and saying many more words than he was ever said before! We thank God for our little (maybe not so little anymore) walking, running and talking miracle!!
Evan goes back to the hospital the middle of this month for a tumor clinic appointment where he will have an MRI and then we will meet with several doctors and determine how things are looking on the inside of his little head. I assume that this last appointment we had a couple of days ago and the one coming up will determine just how often we will have to come up to Spokane for his CT's and MRI's.
We thank God for His touch on Evan's life, and will continue to pray that God will completely heal him! Your continued prayers would be much appreciated!
Thank you, everyone, for your many prayers and support that has been shown in so many different ways! God's richest blessings to you!!
Blessings,
David, Trena and Evan
Some of the nurses recognized him at the hospital and could not believe how much better and healthier he looked compared to when he was in the hospital.
Evan had to have a CT of his head and they also had to do what is called a contrasting CT, which requires an IV so that a type of fluid can be put into his veins during the CT. The CT went well and the doctor's appointment went well, but they had a terrible time getting an IV into his arm. It took 3 attempts and 3 different nurses. I remembered the nurse's name so that if we have to do this again, I will be requesting that she do the IV procedure so that it is not so tramatic for Evan (and me!!).
Evan weighed in just over 30#!!! That is 7.5 # heavier than he was 3 or 4 days before he was admitted in the hospital on June 18! Needless to say, he is doing wonderful and is making progess on a daily basis. He is back to walking and running everywhere and saying many more words than he was ever said before! We thank God for our little (maybe not so little anymore) walking, running and talking miracle!!
Evan goes back to the hospital the middle of this month for a tumor clinic appointment where he will have an MRI and then we will meet with several doctors and determine how things are looking on the inside of his little head. I assume that this last appointment we had a couple of days ago and the one coming up will determine just how often we will have to come up to Spokane for his CT's and MRI's.
We thank God for His touch on Evan's life, and will continue to pray that God will completely heal him! Your continued prayers would be much appreciated!
Thank you, everyone, for your many prayers and support that has been shown in so many different ways! God's richest blessings to you!!
Blessings,
David, Trena and Evan
Friday, July 13, 2007
Friday, July 13, 2007
I received this email from Trena just a few minutes ago. Please continue to keep the family in your prayers.
Blessings - Camille
Just thought I would let you know that I made another trip to emergency last night. Evan had a fever. I called his after hours doctor and he said to immediately bring him to the hospital. They wanted to make sure that his spinal fluid did not show any signs of infection. It did not, after a blood test was done to determine that.
So, this makes two emergency trips to the hospital in the middle of the night this week. The first one was on Monday night. Evan was really fussy when he laid down to try to go to sleep, but was fine when he sat or stood up. The hospital thought that his shunt might be plugged, but after a cat scan, it showed that it was fine. He just was being fussy and did not feel good, I guess. We went home and he has slept fine the following nights with the exception for Thursday night, when we had to take him in to emergency for a fever.
I feel like I am kind of numb. After we got done at the hospital just after 5:00 a.m. I drove to the hospital parkade and parked so I could rest a bit before driving. I thought it might be a bit cooler and off the beaten path for Evan and me to rest a bit. At that point, I had already been up for almost 22 hours. I slept off and on until just after 8:00 when there were so many cars coming and going parking in the parkade that I just could not sleep anymore. I am home now, kind of just floating through the house. I am half afraid if I go to sleep now, I will not want to go to bed tonight. I think I will just kind of lay low and try to do some picking up.
I wanted Brandon to shampoo the living room carpet tonight so it would be clean for Sunday. There are so many spots and stains on it.
God is good and He is faithful. In our weaknesses, He gives us His incredible strength.May He be glorified always!
Blessings,
David, Trena & family
Blessings - Camille
Just thought I would let you know that I made another trip to emergency last night. Evan had a fever. I called his after hours doctor and he said to immediately bring him to the hospital. They wanted to make sure that his spinal fluid did not show any signs of infection. It did not, after a blood test was done to determine that.
So, this makes two emergency trips to the hospital in the middle of the night this week. The first one was on Monday night. Evan was really fussy when he laid down to try to go to sleep, but was fine when he sat or stood up. The hospital thought that his shunt might be plugged, but after a cat scan, it showed that it was fine. He just was being fussy and did not feel good, I guess. We went home and he has slept fine the following nights with the exception for Thursday night, when we had to take him in to emergency for a fever.
I feel like I am kind of numb. After we got done at the hospital just after 5:00 a.m. I drove to the hospital parkade and parked so I could rest a bit before driving. I thought it might be a bit cooler and off the beaten path for Evan and me to rest a bit. At that point, I had already been up for almost 22 hours. I slept off and on until just after 8:00 when there were so many cars coming and going parking in the parkade that I just could not sleep anymore. I am home now, kind of just floating through the house. I am half afraid if I go to sleep now, I will not want to go to bed tonight. I think I will just kind of lay low and try to do some picking up.
I wanted Brandon to shampoo the living room carpet tonight so it would be clean for Sunday. There are so many spots and stains on it.
God is good and He is faithful. In our weaknesses, He gives us His incredible strength.May He be glorified always!
Blessings,
David, Trena & family
Sunday, July 8, 2007
Sunday, July 8, 2007
Trena sent this to me yesterday, but I did not have a chance to post it until this morning.
Blessings,
Camille
Just thought I would get you a little update for Evan. I know that you are busy today as David told me that you guys are going to a wedding. Wishing you a wonderful day! I have LOTS to do here, if you know what I mean.
Evan and I made it home yesterday evening. We finally officially left the hospital around 3:00 p.m. It was so nice to drive from the hospital, knowing that I did not have to return the next day!
It was such a blessing to be able to stay in the Ronald McDonald House for the last week. I read a little bit of history on the Ronald McDonald House and there are only 200 in the United States! I felt so blessed that Spokane would have one for me to stay in!!
Times before the Ronald McDonald House I had stayed at the hospital and showered in the showers at the hospital. I had to take all my luggage/bags with me to Evan's room everyday after I awoke and got showered. I usually slept in a different room the following night. When I finally got into the Ronald McDonald House, it was nice to have a permanent place to just leave all my stuff and not worry about it.
We are asking for a major healing for the remaining brain tumor that the surgeon was not able to get. We were told that it is a slow growing tumor, and that we can expect it to come back. At this point, the treatment plan is to just monitor it with frequent MRI's and cat scans. He first check up is the end of this month and then again the middle of August. After that, it will probably be every 8 weeks or so for the first year. Right now, Evan is on seizure medication, but the plan is to wean him off that in the future. That is a normal med for someone who has had any type of brain trauma.
Evan will have to have some therapy, which will begin sometime next week. At this point, today, he is not walking. But if he got graded on effort, it would be an A+! He was doing some crawling this morning and playing with toys. But, his primary focus is that he wants to walk and stand up. With that determination, I am sure it will not be long before he is in the "race" with keeping up with his siblings.
He has had such a sweet spirit about everything and such a determination to not be just laying in bed. We thank God for His touch on Evan's little life and our family! Remember, please continue to pray for Evan's complete healing! We know God is able and we are trusting that Evan's future will glorify God in a magnificent way!
Unless Camille wants to do periodic updates from time to time, please feel free to leave a comment for me to contact you, or you can e-mail Camille and she can get ahold of me to contact you on Evan's progress.
Thank you again for ALL your prayers and support! We truly appreciate everything!
Blessings,
David, Trena & Evan
(Camille's note: I would be happy to continue to give periodic updates on Evan, if this is something you all would appreciate.)
Blessings,
Camille
Just thought I would get you a little update for Evan. I know that you are busy today as David told me that you guys are going to a wedding. Wishing you a wonderful day! I have LOTS to do here, if you know what I mean.
Evan and I made it home yesterday evening. We finally officially left the hospital around 3:00 p.m. It was so nice to drive from the hospital, knowing that I did not have to return the next day!
It was such a blessing to be able to stay in the Ronald McDonald House for the last week. I read a little bit of history on the Ronald McDonald House and there are only 200 in the United States! I felt so blessed that Spokane would have one for me to stay in!!
Times before the Ronald McDonald House I had stayed at the hospital and showered in the showers at the hospital. I had to take all my luggage/bags with me to Evan's room everyday after I awoke and got showered. I usually slept in a different room the following night. When I finally got into the Ronald McDonald House, it was nice to have a permanent place to just leave all my stuff and not worry about it.
We are asking for a major healing for the remaining brain tumor that the surgeon was not able to get. We were told that it is a slow growing tumor, and that we can expect it to come back. At this point, the treatment plan is to just monitor it with frequent MRI's and cat scans. He first check up is the end of this month and then again the middle of August. After that, it will probably be every 8 weeks or so for the first year. Right now, Evan is on seizure medication, but the plan is to wean him off that in the future. That is a normal med for someone who has had any type of brain trauma.
Evan will have to have some therapy, which will begin sometime next week. At this point, today, he is not walking. But if he got graded on effort, it would be an A+! He was doing some crawling this morning and playing with toys. But, his primary focus is that he wants to walk and stand up. With that determination, I am sure it will not be long before he is in the "race" with keeping up with his siblings.
He has had such a sweet spirit about everything and such a determination to not be just laying in bed. We thank God for His touch on Evan's little life and our family! Remember, please continue to pray for Evan's complete healing! We know God is able and we are trusting that Evan's future will glorify God in a magnificent way!
Unless Camille wants to do periodic updates from time to time, please feel free to leave a comment for me to contact you, or you can e-mail Camille and she can get ahold of me to contact you on Evan's progress.
Thank you again for ALL your prayers and support! We truly appreciate everything!
Blessings,
David, Trena & Evan
(Camille's note: I would be happy to continue to give periodic updates on Evan, if this is something you all would appreciate.)
Thursday, July 5, 2007
Thursday, July 5, 2007
Good news coming your way.....
I was told this morning that Evan will be released from Sacred Heart Children's Hospital either tomorrow or Saturday! We are so excited!!!
The therapist was working with him this morning and he was crawling and doing things with his right hand. This seems to be his weak side with his hand, leg and face (smile and eye). It doesn't help him any when he seems to be dominant left handed, so he has had to try a little bit harder to get his right side to work.
Thank you so much for your much needed prayers, support, love and concern! We truly appreciate it!
Blessings,
David, Trena & Evan
I was told this morning that Evan will be released from Sacred Heart Children's Hospital either tomorrow or Saturday! We are so excited!!!
The therapist was working with him this morning and he was crawling and doing things with his right hand. This seems to be his weak side with his hand, leg and face (smile and eye). It doesn't help him any when he seems to be dominant left handed, so he has had to try a little bit harder to get his right side to work.
Thank you so much for your much needed prayers, support, love and concern! We truly appreciate it!
Blessings,
David, Trena & Evan
Wednesday, July 4, 2007
Wednesday, Independence Day, 2007
Independence...for our nation...and for Evan! He has been freed from PICU (Pediatrics Intensive Care Unit)..more below:
Just a little update on our little man! Evan was transferred to the Oncology Unit this morning. He is no longer in Peds ICU!! PTL!! He had a good night last night. The nurse said that he slept all night until 6 this morning and she gave him his bottle. He went back to sleep and was asleep this morning when I got to his room around 8:30. His new room is so much bigger. It has a couch, bathroom/shower, refrigerator, desk, tv, and a couple of chairs. Much more accomadating for visitors.............not so crowded. Although, it would still be nice to be at home. In time................soon.............
Thank you again for uplifting our family and Evan! God is so good, and may He be glorified in ALL that we do and ALL that we are!!
Have a wonderful 4th!!
Blessings,
David, Trena & Evan
Just a little update on our little man! Evan was transferred to the Oncology Unit this morning. He is no longer in Peds ICU!! PTL!! He had a good night last night. The nurse said that he slept all night until 6 this morning and she gave him his bottle. He went back to sleep and was asleep this morning when I got to his room around 8:30. His new room is so much bigger. It has a couch, bathroom/shower, refrigerator, desk, tv, and a couple of chairs. Much more accomadating for visitors.............not so crowded. Although, it would still be nice to be at home. In time................soon.............
Thank you again for uplifting our family and Evan! God is so good, and may He be glorified in ALL that we do and ALL that we are!!
Have a wonderful 4th!!
Blessings,
David, Trena & Evan
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