Thursday, July 5, 2007

Thursday, July 5, 2007

Good news coming your way.....

I was told this morning that Evan will be released from Sacred Heart Children's Hospital either tomorrow or Saturday! We are so excited!!!

The therapist was working with him this morning and he was crawling and doing things with his right hand. This seems to be his weak side with his hand, leg and face (smile and eye). It doesn't help him any when he seems to be dominant left handed, so he has had to try a little bit harder to get his right side to work.

Thank you so much for your much needed prayers, support, love and concern! We truly appreciate it!

Blessings,

David, Trena & Evan

Wednesday, July 4, 2007

Wednesday, Independence Day, 2007

Independence...for our nation...and for Evan! He has been freed from PICU (Pediatrics Intensive Care Unit)..more below:

Just a little update on our little man! Evan was transferred to the Oncology Unit this morning. He is no longer in Peds ICU!! PTL!! He had a good night last night. The nurse said that he slept all night until 6 this morning and she gave him his bottle. He went back to sleep and was asleep this morning when I got to his room around 8:30. His new room is so much bigger. It has a couch, bathroom/shower, refrigerator, desk, tv, and a couple of chairs. Much more accomadating for visitors.............not so crowded. Although, it would still be nice to be at home. In time................soon.............

Thank you again for uplifting our family and Evan! God is so good, and may He be glorified in ALL that we do and ALL that we are!!

Have a wonderful 4th!!

Blessings,

David, Trena & Evan

Tuesday, July 3, 2007

Tuesday, July 3, 2007 - Evening Report

Time for a laugh.....

Evan has been eating and drinking his goat milk formula/pedialyte bottles pretty well today and he has taken two long naps on his own, one being just a little over two hours long!

One thing that he did today that was kind of cute: He got ahold of the TV remote which also has the NURSE call light and he pushed it!! Not just once, but twice!

The nurses thought was pretty cute, too!

Tuesday, July 3, 2007 - Morning Report

The morning report is a little late...my apologies!!! However, we were in Spokane today and got to see Mr. Evan! He was still a bit groggy from the surgery, but had a smile or two for Troy, the kids and I! He also shared his plastic banana with me!

Here is the update from Trena:

Hi, Camille~

Well, when I got here this morning, I heard a very upset little boy. He was NOT a happy camper! We have now given him a small bottle of pedialyte and he kept it down, so as I am typing this he is getting his goat milk formula and pedia sure. He was asking for a bottle when I came into the room. I am sure he is really hungry as it has been since midnight of night before last since he has had anything to eat. He is a pretty easy going little boy, for the most part, EXCEPT when one interferes with his "food" !

They took out his stitches yesterday after his surgery and it looks pretty good where they were. When his hair grows back, it will be difficult to see just where his large incision is located.

Since he was pretty fussy last night, the nurse said that they will most likely keep him in ICU for today and try to move him to the Peds Oncology Unit tomorrow. Who knows, though? Maybe after he starts eating, he might be a totally different child and they might just decide to move him on to the Oncology Unit. Time will tell............

My hope and prayer is that we will get to go home very soon!! This "hospital life" is not the greatest, although I don't want to discredit the staff that is here at Children's Sacred Heart, they have been great!!

We continue to press on.........day by day,,,,,,,,,hour by hour..........minute by minute............. breath by breath........... Thank you for your continuing support and prayers!! We feel totally surrounded by these!

Blessings,

David and Trena

Monday, July 2, 2007

Monday, July 2, 2007 - Evening Update

Update from Trena:

Evan is back from his surgery and he is doing fine. He was a bit fussy and crying with a hoarse voice. I held him for a little bit until he settled down and he is now resting peacefully in his bed in the ICU unit.

The doctor/surgeon said that the surgery went really well. They also took out his stitches from his surgery 12 days ago. I am so thankful for the many wonderful things that they can do now with so many life threatening situations AND more than that, I am so thankful for the many prayers and support that has been sent Heaven/ward on his and our behalf. God is faithful and we are being faithful!

We have learned much and still have much to learn. Sometimes it can seem so overwhelming with everything, but one day at a time..........one hour at a time.........one minute at a time....... one breath at a time...........

Again, we thank all of you for your support, care and prayers.

Blessings to you all.......

Love, David and Trena

Monday, July 2, 2007

Update from Trena:

Evan's surgery is set for sometime late this afternoon. I don't have an exact time, we have been told several different times, but nothing is set in concrete. I do know that he is 4th on the surgery schedule for today with his surgeon, so I imagine it just depends on how the surgeries go for the ones before Evan.

Evan has been a bit on the fussy side today. I am sure a lot of this is due to the fact that he has not had anything to eat since last night. His little tummy has to be empty for the surgery. He has asked for a banana.

Thank you for your continued support and prayers. We feel them constantly! God is faithful and may He be glorified through this whole ordeal and always!!

Love, Trena

Sunday, July 1, 2007

Sunday, July 1, 2007

Trena sent the following update:

If all goes well after the surgery this coming week...............and if there is not any infections..........................and if, if, if,if.........one of the doctors told me yesterday that we might be able to go back home by the end of next week. That would be so nice. I miss being home so much and when the children were here at the hospital on Friday evening, a lot of them really cried and cried when I stayed at the hospital and David took them all home again. It was VERY hard for me and I know it was hard for them, too.

Evan's appetite continues to be back to what he was normally eating (and that was a lot!!). He will have to start that all over again when he has surgery and will not be able to have food for a day or so again.

Evan's sodium level is now consistantly in the normal range, the last one being 136. He is still producing a fair amount of excess CSF, so surgery, at this point, is imminent. He still has a bit of a crooked smile, but that's ok. That's our Evan, whether it be temporary or permanent, it's ok!

I am now staying at the Ronald McDonald house about 6 blocks or so from the hospital. I really don't like being so far away from the hospital at night, but it is nice to not have to tote my luggage back and forth from my sleeping room to Evan's ICU room everyday.

The staff here in this unit and the doctors have been superb!! They have answered my many questions over and over again and some have even given hugs and support when I fell apart a couple of times, just from the stress of not knowing. Above all, God has been faithful and He has been my strength to cope with each minute of each day................like one of my precious friends told me.........one day at a time.........one breath at a time............and sometimes that it just what it is!!

I really appreciate the many comments and prayers that have been sent our way! They have been so encouraging and I go back and re-read them several times...........again and again. We are abundantly blessed with so many caring friends! My cup overflows!!

Blessings, Trena