Well, it is time for a much overdue update for Evan's blog! I have been posting little updates on my facebook status and have kind of neglected his blogspot, evangimmakaupdates.blogspot.com I don't really remember just where we left off, but I will give a highlight of the past year or so.
As of January 2011, Evan completed 8 rounds(which took one year) of oral and IV chemotherapy. This was all new to me and to Evan. I struggled with doing the oral chemo at home, but we did it. So many precautions I had to do to protect myself and the rest of our family. It made Evan so sick and he would do a lot of sleeping on those oral chemo days here at home.
He had all of his IV chemo treatments in Kadlec Hospital in Richland, through Seattle Children's Hospital. Probably one of the worst side affects from his IV chemo was that his knee and ankle joints would hurt so bad. After he had been sitting or sleeping for awhile, he would tell me that his leg was broken. He would and still does walk stiffly after he gets up from a nap or has been sitting for awhile.
In May of 2011 he had outpatient surgery to have his port removed. He was so happy! He told us over and over again......"No more chemo.....see? No more port!"
He had an MRI in March and it showed no change in the tumor size. It is still the size of a golf ball. We also had some testing done on his eyes. He has no vision in his left eye and has 20/25 acuity vision in his right eye with no peripheral vision. The doctor said it would be like looking through a paper towel tube, which really explains why he frequently asks me for his fork when it is right next to his plate. He just can't see it!
His next MRI is supposed to be sometime in June. We don't have an exact date yet.
Children's Hospital in Seattle has been great to work with and they have made great efforts in getting their new wing set up at Kadlec Hospital in Richland. This has been a huge blessing for us so that we don't have to travel quite so far for his MRI's, bloodwork and chemo. We still make every other trip for his MRI's and eye tests in Seattle and the other ones are in Richland at Kadlec.
For right now, the plan is to do MRI's every 3 months to monitor the tumor. If there should be a change in the tumor showing growth, then the oncologist said that we would be looking at some form of radiation.
Through all of this, we continue to see God at work in Evan's little life! He is such a shining example for us! If he ever says anything about the pain that he is in, he doesn't dwell on it and just moves on with his little life! We continue to pray that God will heal him, but for now, God has pretty much comforted us with the fact that "His Grace is Sufficient"!
We have been so humbled by so many people's prayers, concern, encouragement and blessings to us! We pray that God will return this 100 fold back to you! Blessings to you all!
Thursday, May 5, 2011
Wednesday, September 15, 2010
September 2010
A much overdue update for Evan. I'm so sorry for not having posted updated posts for Evan.
Evan continues to have some form of chemotherapy every 2 weeks. One week he does oral chemo for 3 1/2 days, two weeks later we go to Richland Kadlec Hospital for IV chemo done through his port and two weeks later we repeat the IV chemo through his port at Richland Kadlec Hospital.
The last two oral chemo doses have really been hard for Evan (and me!). He has increased in vomiting and vomits until at least 6 hours after his last dose.
The last two IV chemo treatments through his port have increased symptoms of severe stiffness in his ankles and/or knees. Evan frequently tells me, as he struggles to walk, that his knee or leg is broken. His skin also seems to be really sensitive to touch and he really lets us know when we bump him causing him intense pain, like pins and needles on the outside of his skin.
In spite of all the "bad" stuff, overall Evan continues to have such a sweet spirit and attitude! (Something God has been showing me!) He smiles and laughs easily.
Evan has an MRI scheduled for Friday morning at Seattle Children's Hospital, followed by an appointment with his oncologist. After that, the plan is to pick up his next round of oral chemo from the pharmacy and head home.
Each day God gives us is a blessing and we continue to learn to live life with a grateful heart making each activity, conversation and attitude a life-giving, God glorifying experience. We fail often, but it does seem to me that little by little we are learning to do this more and more.
I can't remember if I posted this in the past or not, so I'll do it again for good measure.....:) We have closed Evan's donation account to Chase Bank, as they were withdrawing monthly charges out of his account. Currently, the only account we have open is the one through Bank of Whitman.
Thank you for everyone's continued love, prayers, encouragement and support!! We know and feel God's Loving Arms wrapped around each of us and our home! May God be totally glorified in and through our lives and home!
Blessings,
David and Trena
Evan continues to have some form of chemotherapy every 2 weeks. One week he does oral chemo for 3 1/2 days, two weeks later we go to Richland Kadlec Hospital for IV chemo done through his port and two weeks later we repeat the IV chemo through his port at Richland Kadlec Hospital.
The last two oral chemo doses have really been hard for Evan (and me!). He has increased in vomiting and vomits until at least 6 hours after his last dose.
The last two IV chemo treatments through his port have increased symptoms of severe stiffness in his ankles and/or knees. Evan frequently tells me, as he struggles to walk, that his knee or leg is broken. His skin also seems to be really sensitive to touch and he really lets us know when we bump him causing him intense pain, like pins and needles on the outside of his skin.
In spite of all the "bad" stuff, overall Evan continues to have such a sweet spirit and attitude! (Something God has been showing me!) He smiles and laughs easily.
Evan has an MRI scheduled for Friday morning at Seattle Children's Hospital, followed by an appointment with his oncologist. After that, the plan is to pick up his next round of oral chemo from the pharmacy and head home.
Each day God gives us is a blessing and we continue to learn to live life with a grateful heart making each activity, conversation and attitude a life-giving, God glorifying experience. We fail often, but it does seem to me that little by little we are learning to do this more and more.
I can't remember if I posted this in the past or not, so I'll do it again for good measure.....:) We have closed Evan's donation account to Chase Bank, as they were withdrawing monthly charges out of his account. Currently, the only account we have open is the one through Bank of Whitman.
Thank you for everyone's continued love, prayers, encouragement and support!! We know and feel God's Loving Arms wrapped around each of us and our home! May God be totally glorified in and through our lives and home!
Blessings,
David and Trena
Friday, April 30, 2010
April 30, 2010 Update
David and I left for Seattle on Tuesday for Evan's appointments on Wednesday. Evan's 1st appointment was a blood draw, which normally is not a big thing. They just have to access his port and draw the blood samples from there. But, for some reason, it wasn't an easy task this time. The nurse had a terrible time getting the needed blood to check everything they check each time. After several attempts, she was finally able to get the needed amount of blood. Evan was very upset by this time. This hasn't ever happened before and I pray that it doesn't happen again. It was hard on Evan and also hard on me.
Evan's next appointment was to have his eyes checked and, of course, they needed to dialate his eyes. Since the day didn't start out very well with the blood draw, I think Evan was a little easier agitated than he normally would have been. He has had his eyes dialated before and has never had that much problem with the procedure. The concluding prognosis was that Evan's vision has gotten worse in his left eye (his bad eye) and it looks like maybe his left eye is not as mobile and not tracking like it normally would; and maybe a bit worse in good eye, vision wise. The dr. looked at his optical nerve also and said that the nerve to the left eye doesn't show any color to it (as in pink meaning life and gray having no life or circulation). The optical nerve to his good eye showed some pink on the outside of the nerve but had gray lifeless color in the center.
The next appointment was with his oncologist. He looked at the lab work and said that everything looked good enough to start his 3rd round of Chemo. He checked him over and thought he looked good. Right after he left the room another dr. came into the room to look at Evan's shunt. In a nutshell, everything was a "green light" for us to begin his 3rd round of Chemo.
We headed to the pharmacy to pick up the prescription of oral Chemo. This was just not a quick trip to the pharmacy and then on our way home. We waited atleast 90 minutes for the prescription to be filled. By the time we were out to the car to head home, Evan was ready for a nap!
On our way home, Evan got sick and vomited in the car. This was not chemo related as he had not been given any yet. So, he must have gotten some flu bug. Anyway, he has been fine today and I started giving him his oral Chemo tonight. I would appreciate your prayers especially during the next few days for Evan and also for me. This part of the round of chemo is where vomiting takes place. I don't do vomit very well and it is a struggle for me to clean up, plus the chemo has to be given at 6 hr. intervals around the clock for 4 days.
God's peace, grace and strength continue to encompass us as we travel this journey. We are so thankful for wonderful family and friends that encourage, support and pray for us! It is priceless! May God be glorified mightily in all that we do, think and say!
Blessings,
David and Trena
(Here are some pictures of Evan living life. Please do not pay attention to the date on the pictures as they are not correct, at least the ones that say 2007 *smile*)
Evan's next appointment was to have his eyes checked and, of course, they needed to dialate his eyes. Since the day didn't start out very well with the blood draw, I think Evan was a little easier agitated than he normally would have been. He has had his eyes dialated before and has never had that much problem with the procedure. The concluding prognosis was that Evan's vision has gotten worse in his left eye (his bad eye) and it looks like maybe his left eye is not as mobile and not tracking like it normally would; and maybe a bit worse in good eye, vision wise. The dr. looked at his optical nerve also and said that the nerve to the left eye doesn't show any color to it (as in pink meaning life and gray having no life or circulation). The optical nerve to his good eye showed some pink on the outside of the nerve but had gray lifeless color in the center.
The next appointment was with his oncologist. He looked at the lab work and said that everything looked good enough to start his 3rd round of Chemo. He checked him over and thought he looked good. Right after he left the room another dr. came into the room to look at Evan's shunt. In a nutshell, everything was a "green light" for us to begin his 3rd round of Chemo.
We headed to the pharmacy to pick up the prescription of oral Chemo. This was just not a quick trip to the pharmacy and then on our way home. We waited atleast 90 minutes for the prescription to be filled. By the time we were out to the car to head home, Evan was ready for a nap!
On our way home, Evan got sick and vomited in the car. This was not chemo related as he had not been given any yet. So, he must have gotten some flu bug. Anyway, he has been fine today and I started giving him his oral Chemo tonight. I would appreciate your prayers especially during the next few days for Evan and also for me. This part of the round of chemo is where vomiting takes place. I don't do vomit very well and it is a struggle for me to clean up, plus the chemo has to be given at 6 hr. intervals around the clock for 4 days.
God's peace, grace and strength continue to encompass us as we travel this journey. We are so thankful for wonderful family and friends that encourage, support and pray for us! It is priceless! May God be glorified mightily in all that we do, think and say!
Blessings,
David and Trena
(Here are some pictures of Evan living life. Please do not pay attention to the date on the pictures as they are not correct, at least the ones that say 2007 *smile*)
Saturday, April 3, 2010
April 3, 2010 Update
We have had the cold/coughs in our home this past week or so. Evan was doing really well for not getting sick until Thursday. By Friday evening he had a rising temperature. In his "notebook" that we received from Children's Hospital, it gave specific special guidelines to what to do when your child has a fever. It is a lot different due to the fact that the child that is being given chemo cannot have a very high temp plus they don't want you to give any Tylenol or pain reliever. His temp kept rising yesterday evening so I made that phone call to the oncologist on call at Seattle Children's Hospital. We monitored it for a couple of hours and it was gradually rising. When I called the oncologist-on-call from Seattle, he told me to take him into Kadlec Hospital in Richland and get him checked out. So, I packed a suitcase (I didn't know if it would be a quick trip or if he would have to stay there) and we left the house around 9 p.m.
After many kinds of tests and x-rays, it was determined that Evan had pneumonia. The protocol was to put him on oral antibiotics and send him home. We got home just a few minutes before 4 a.m.
When I first called the oncologist over in Seattle, I started experiencing a spirit/feeling of being overwhelmed and just felt like crying and crying. I sent a quick text message to some people, and I know Evan and I were immediately lifted to God's Throne! It was absolutely amazing the peace and grace we experienced before we even left for the hospital! God is so good and so faithful! Evan was calm and so was I!
Monday, we still plan to go to Kadlec Hospital for his IV Chemotherapy, that is, unless they decide to hold off until he is completely well.
Thank you so much for your continued love, prayers, support, and encouragement! May God continue to use us for His Glory!
Blessings,
David, Trena
& family
After many kinds of tests and x-rays, it was determined that Evan had pneumonia. The protocol was to put him on oral antibiotics and send him home. We got home just a few minutes before 4 a.m.
When I first called the oncologist over in Seattle, I started experiencing a spirit/feeling of being overwhelmed and just felt like crying and crying. I sent a quick text message to some people, and I know Evan and I were immediately lifted to God's Throne! It was absolutely amazing the peace and grace we experienced before we even left for the hospital! God is so good and so faithful! Evan was calm and so was I!
Monday, we still plan to go to Kadlec Hospital for his IV Chemotherapy, that is, unless they decide to hold off until he is completely well.
Thank you so much for your continued love, prayers, support, and encouragement! May God continue to use us for His Glory!
Blessings,
David, Trena
& family
March 20, 2010 Update
(This is late due to a tardy updater - namely, me...Blessings, Camille)
Ok........an update is overdue, once again! Lots going on and this is always a busy time of the year, especially with these nice days......makes one want to get outside and forget the inside chores and such.
Evan will go to Kadlec in Richland on Monday for an IV Chemo. I am thankful for the great staff that we have met there. Children's Hospital's extension to Richland has been a wonderful thing for us, so that we don't have to travel to Seattle quite so often.
Several people have asked me the chemo routine that Evan is on, so I will try to put it down here, in a nutshell, so to speak. Each 42 day cycle (6 weeks) is counted as a "Round". Below will be an example of a "Round" of chemo. Days 0-4 are oral chemo treatments 6 hrs apart around the clock........example - 6am....12pm....6pm....12am
Day 0 - 1st oral chemo at 6pm
Day 1 - Oral chemo at 12am.....6am....12noon....6pm
Day 2 - Oral chemo at 12am.....6am....12noon....6pm
Day 3 - Oral chemo at 12am.....6am....12noon....6pm
Anti-nausea meds taken 1 hour before each chemo dose 4x this day
Day 4 - Oral chemo at 12am
Anti-nausea meds taken 1 hour before this chemo, also.
Day 14 - IV chemo at Kadlec Hospital in Richland
Day 28 - IV chemo at Kadlec Hospital in Richland
We are currently in the 2nd Round of his chemo treatments, being on Day 14 as of Monday, the 22nd.
Evan has recently been accepted as a "Wishing Star Kid" through the Wishing Star Foundation. It is a small, local organization that does great things for families and children with serious and terminal illnesses. One week ago we had two volunteers come out and meet some of our family. They were really nice. You can learn more about this organization at www.wishingstar.org
God continues to provide us with grace, strength and His peace in all that we have done, are doing and, by faith, going to do! He has taken care of us in so many amazing ways and we are so thankful for His faithfulness, even in times of our unfaithfulness. Amongst the many blessings, God has provided us with many wonderful family members and friends, both old and new! Thank you so much for your encouragement, love, prayers, support and donations!!
We feel your prayers and love! May God continue to be glorified in and through our home in all that we do and say!
Blessings,
David, Trena
AND family
Ok........an update is overdue, once again! Lots going on and this is always a busy time of the year, especially with these nice days......makes one want to get outside and forget the inside chores and such.
Evan will go to Kadlec in Richland on Monday for an IV Chemo. I am thankful for the great staff that we have met there. Children's Hospital's extension to Richland has been a wonderful thing for us, so that we don't have to travel to Seattle quite so often.
Several people have asked me the chemo routine that Evan is on, so I will try to put it down here, in a nutshell, so to speak. Each 42 day cycle (6 weeks) is counted as a "Round". Below will be an example of a "Round" of chemo. Days 0-4 are oral chemo treatments 6 hrs apart around the clock........example - 6am....12pm....6pm....12am
Day 0 - 1st oral chemo at 6pm
Day 1 - Oral chemo at 12am.....6am....12noon....6pm
Day 2 - Oral chemo at 12am.....6am....12noon....6pm
Day 3 - Oral chemo at 12am.....6am....12noon....6pm
Anti-nausea meds taken 1 hour before each chemo dose 4x this day
Day 4 - Oral chemo at 12am
Anti-nausea meds taken 1 hour before this chemo, also.
Day 14 - IV chemo at Kadlec Hospital in Richland
Day 28 - IV chemo at Kadlec Hospital in Richland
We are currently in the 2nd Round of his chemo treatments, being on Day 14 as of Monday, the 22nd.
Evan has recently been accepted as a "Wishing Star Kid" through the Wishing Star Foundation. It is a small, local organization that does great things for families and children with serious and terminal illnesses. One week ago we had two volunteers come out and meet some of our family. They were really nice. You can learn more about this organization at www.wishingstar.org
God continues to provide us with grace, strength and His peace in all that we have done, are doing and, by faith, going to do! He has taken care of us in so many amazing ways and we are so thankful for His faithfulness, even in times of our unfaithfulness. Amongst the many blessings, God has provided us with many wonderful family members and friends, both old and new! Thank you so much for your encouragement, love, prayers, support and donations!!
We feel your prayers and love! May God continue to be glorified in and through our home in all that we do and say!
Blessings,
David, Trena
AND family
Saturday, March 6, 2010
March 5, 2010 Update
God is still on the throne no matter what happens!! Evan had his MRI yesterday at Children's Hospital in Seattle. The results weren't exactly what we were looking for, but it doesn't change anything in our trust in God! If anything, it even draws us closer to our Lord to trust Him in a still deeper way.
The MRI results stated that there was about 1-2mm growth in Evan's tumor. His oncologist told us that this was not real alarming to him, at this point, but it is definitely going to be something to watch when he has his next MRI in 3 months. He said that is there is continued growth then we will have to look at doing something different; meaning a change in doing a different, more aggressive chemo and/or radiation.
God's peace surrounds us in a magnificent way that words could never express! We are so thankful for the many prayers on Evan's behalf, and not to mention, our behalf! Thank you so much!
We will start Evan's oral Chemo tonight. His next IV treatments are already set up in Richland, Kadlec Hospital, for the middle and end of this month.....2 weeks apart.
Our continued prayer is that God would be mightily glorified in all that we do, say and think in our home and through our lives!
Blessings,
David and Trena
The MRI results stated that there was about 1-2mm growth in Evan's tumor. His oncologist told us that this was not real alarming to him, at this point, but it is definitely going to be something to watch when he has his next MRI in 3 months. He said that is there is continued growth then we will have to look at doing something different; meaning a change in doing a different, more aggressive chemo and/or radiation.
God's peace surrounds us in a magnificent way that words could never express! We are so thankful for the many prayers on Evan's behalf, and not to mention, our behalf! Thank you so much!
We will start Evan's oral Chemo tonight. His next IV treatments are already set up in Richland, Kadlec Hospital, for the middle and end of this month.....2 weeks apart.
Our continued prayer is that God would be mightily glorified in all that we do, say and think in our home and through our lives!
Blessings,
David and Trena
Wednesday, February 24, 2010
Jan/Feb Update 2010
Evan had his 1st IV Chemotherapy in Richland this last Monday, the 15th. It went well and he is scheduled to do all future IV Chemo treatments at Kadlec Hospital in Richland, rather than Seattle. We have appointments set up in Seattle on March 5 for an MRI and blood work. We will then pick up Evan's oral chemo meds for the 2nd round of chemo. The oral meds is the worst part of each 6 week round for Evan. He gets really sick and last time he spent those 3 plus days vomiting and sleeping excessively.
His Chemo routine is based on a 6 week schedule with Days 1 - 2 - 3 and part of 4th day being given oral chemo every 6 hrs round the clock. Day 14 is the IV Chemo and it is administered at Kadlec after routine blood work is drawn. Day 28 is the last IV Chemo at Kadlec Hospital after routine blood work. The end of this round is on Day 42 and then another round starts with Day 1....etc....At the beginning of each round we make an overnight trip to Seattle to see his oncologist, do blood work and pick up his oral chemo meds for the next round. Every other time we will be scheduled for an MRI. The plan is to do this for one year.
We are getting copies of Evan's blood work results each time and quite truthfully, it is distressing to see his blood counts decrease and also his weight dropping little by little. The dr. and nurses don't seem to be too overly concerned with these stats, but they do concern me.
I would be putting up a front if I said, "All is well.....Evan and we are doing great." Peace of heart and mind have been a struggle, so I ask that you continue to remember us in your thoughts and prayers. God's got a plan - it's just that right now I don't understand it and/or may even be in denial that this might be the path we are to walk down. I do know that my heart aches like it probably never has before. Words cannot describe the waves of emotion as our son is being given such powerful chemicals/meds knowing that our hands are tied. It's a helpless feeling of not knowing how to comfort your child and feeling guilty for allowing this to happen.
But I have to remember God has a plan and sees the bigger picture. So hard to do, but a walk/journey that takes a lot of faith. Ultimately, we know we serve an AWESOME God that does love and care for us. I do know that, although sometimes my emotions tell me differently. (Maybe kind of like a child that gets into trouble and may not feel like his parents love him or maybe like a child that wants to do one thing and the parent tells him, "No, we are going to do this.")
So.....it's not about us but about bringing Glory to the Lord of Lords and King of Kings. Sometimes (actually, a lot of times) we get so wrapped up in our lives here on earth that we forget this life here on earth is just a layover, and that our final destination is HEAVEN. I need to remind myself of this more often.
Despite all the chemo, Evan continues his natural vitamins and herbs. Thank you for your continued support in prayers, donations, friendship, love and encouragement. May God glorify Himself in and through our lives and home!
Blessings,
David and Trena
His Chemo routine is based on a 6 week schedule with Days 1 - 2 - 3 and part of 4th day being given oral chemo every 6 hrs round the clock. Day 14 is the IV Chemo and it is administered at Kadlec after routine blood work is drawn. Day 28 is the last IV Chemo at Kadlec Hospital after routine blood work. The end of this round is on Day 42 and then another round starts with Day 1....etc....At the beginning of each round we make an overnight trip to Seattle to see his oncologist, do blood work and pick up his oral chemo meds for the next round. Every other time we will be scheduled for an MRI. The plan is to do this for one year.
We are getting copies of Evan's blood work results each time and quite truthfully, it is distressing to see his blood counts decrease and also his weight dropping little by little. The dr. and nurses don't seem to be too overly concerned with these stats, but they do concern me.
I would be putting up a front if I said, "All is well.....Evan and we are doing great." Peace of heart and mind have been a struggle, so I ask that you continue to remember us in your thoughts and prayers. God's got a plan - it's just that right now I don't understand it and/or may even be in denial that this might be the path we are to walk down. I do know that my heart aches like it probably never has before. Words cannot describe the waves of emotion as our son is being given such powerful chemicals/meds knowing that our hands are tied. It's a helpless feeling of not knowing how to comfort your child and feeling guilty for allowing this to happen.
But I have to remember God has a plan and sees the bigger picture. So hard to do, but a walk/journey that takes a lot of faith. Ultimately, we know we serve an AWESOME God that does love and care for us. I do know that, although sometimes my emotions tell me differently. (Maybe kind of like a child that gets into trouble and may not feel like his parents love him or maybe like a child that wants to do one thing and the parent tells him, "No, we are going to do this.")
So.....it's not about us but about bringing Glory to the Lord of Lords and King of Kings. Sometimes (actually, a lot of times) we get so wrapped up in our lives here on earth that we forget this life here on earth is just a layover, and that our final destination is HEAVEN. I need to remind myself of this more often.
Despite all the chemo, Evan continues his natural vitamins and herbs. Thank you for your continued support in prayers, donations, friendship, love and encouragement. May God glorify Himself in and through our lives and home!
Blessings,
David and Trena
Tuesday, January 19, 2010
January 18, 2010
Spoke with Trena last night...here is the latest on Evan in a nutshell:
He is in the comfort of his own home! Mom has to administer 4 different chemotherapy medications to him orally every 6 hours. This regimen began on Saturday night, and will continue until Wednesday morning. So far, he is tolerating the medications well.
Tentatively, they will go back to Seattle on February 1 for his first IV chemotherapy treatment. On February 15, he will have another round of IV chemotherapy, prayerfully at the Children's Hospital in Tri-Cities.
That is the news for now. I will keep you updated as I can. Trena is currently without computer.
Please continue to keep the family in your prayers.
He is in the comfort of his own home! Mom has to administer 4 different chemotherapy medications to him orally every 6 hours. This regimen began on Saturday night, and will continue until Wednesday morning. So far, he is tolerating the medications well.
Tentatively, they will go back to Seattle on February 1 for his first IV chemotherapy treatment. On February 15, he will have another round of IV chemotherapy, prayerfully at the Children's Hospital in Tri-Cities.
That is the news for now. I will keep you updated as I can. Trena is currently without computer.
Please continue to keep the family in your prayers.
Thursday, January 14, 2010
Prayers for Evan
Evan is having the port placed today for his future chemo treatments. Please keep him in your prayers.
Friday, January 8, 2010
January 8, 2010
Dearest Family and Friends~
Just thought I would give a brief update concerning Evan. We went over to Seattle for an appointment with Evan's oncologist today. The prognosis is that we will be starting chemo on Evan next week. David and I plan to go over on Wednesday afternoon as Evan has an out-patient surgery to put in a port for the chemo. Then on Friday afternoon, the plan is to have labs drawn, see his oncologist and then have his first chemo treatment. After Evan is stable, we will plan to head back home. These chemo treatments will take a period of 1 year. I don't have the complete schedule, but that will all be made known and written down next week when we get started.
Seattle Children's hospital is starting a pediatric cancer treatment wing at Kadlec Hospital in Richland. AND, Evan's oncologist is the one that is going to be supervising this new addition to Kadlec Hospital. So, when Evan needs to go in for his IV chemo, we will be able to go to Richland, rather than Seattle! But, his oncologist still wants us to return to Seattle Children's Hospital for his MRI's and the special eye test that he will have to have every 3 months. We are thankful that a majority of Evan's chemo treatments can be in Richland, rather than having to drive over to Seattle.
Evan's medical insurance will cover all the medical expenses, but will not cover the "outside" expenses, so to speak. He will continue his herbs and nutritional supplements from his natureopath, also.
As you can see, lots going on and we continue to trust God, even though we don't understand or even know why..............we are not called to understand or even know why, just to walk close to God and completely trust Him with everything that we have and everyone that we know and love.................This is something that one can talk about, but where the "rubber meets the road" is when something or someone is threatened or even taken away from you and you have to ask yourself, "Am I living what I am preaching?" We pray that our lives are doing just that.
With all that said, we still don't hesitate to ask you for your continued prayers and support.
We appreciate your thoughts, prayers, encouragement and support. We thank God for the network of people that he has placed in our lives! God's richest blessings to you all!
Blessings,
David and Trena
Just thought I would give a brief update concerning Evan. We went over to Seattle for an appointment with Evan's oncologist today. The prognosis is that we will be starting chemo on Evan next week. David and I plan to go over on Wednesday afternoon as Evan has an out-patient surgery to put in a port for the chemo. Then on Friday afternoon, the plan is to have labs drawn, see his oncologist and then have his first chemo treatment. After Evan is stable, we will plan to head back home. These chemo treatments will take a period of 1 year. I don't have the complete schedule, but that will all be made known and written down next week when we get started.
Seattle Children's hospital is starting a pediatric cancer treatment wing at Kadlec Hospital in Richland. AND, Evan's oncologist is the one that is going to be supervising this new addition to Kadlec Hospital. So, when Evan needs to go in for his IV chemo, we will be able to go to Richland, rather than Seattle! But, his oncologist still wants us to return to Seattle Children's Hospital for his MRI's and the special eye test that he will have to have every 3 months. We are thankful that a majority of Evan's chemo treatments can be in Richland, rather than having to drive over to Seattle.
Evan's medical insurance will cover all the medical expenses, but will not cover the "outside" expenses, so to speak. He will continue his herbs and nutritional supplements from his natureopath, also.
As you can see, lots going on and we continue to trust God, even though we don't understand or even know why..............we are not called to understand or even know why, just to walk close to God and completely trust Him with everything that we have and everyone that we know and love.................This is something that one can talk about, but where the "rubber meets the road" is when something or someone is threatened or even taken away from you and you have to ask yourself, "Am I living what I am preaching?" We pray that our lives are doing just that.
With all that said, we still don't hesitate to ask you for your continued prayers and support.
We appreciate your thoughts, prayers, encouragement and support. We thank God for the network of people that he has placed in our lives! God's richest blessings to you all!
Blessings,
David and Trena
Wednesday, January 6, 2010
January 6, 2010
Please pray for David, Trena, and Evan as they travel to Seattle today for another appointment with the oncologist, which will be on Thursday. Pray for safe travels, and that all would go according to God's awesome plan.
Thanks much!
Thanks much!
Wednesday, December 30, 2009
December 2009 Update
Evan's last appointment in Seattle was on December 2. Brently, Evan and I all went over the day before as his appointment day at Children's Hospital consisted of 6 different appointments. It was a very long day and I am thankful that Brently was there to help me and keep me company.
The day started with an appointment at the Opthalmology Clinic at 9 a.m. for an Electroretinogram. This was to get a more accurate measure of Evan's vision. His exam entailed the doctor putting several electrodes on his head to get a reading when he looked at a screen for contrasting and I think, perefial (sp?) vision. This doctor did not talk alot of details but did say that he even doubted that Evan even had counting fingers vision in his left eye, if any vision at all. His right eye, as we found out later from the test results, showed that there are also concerns with his "good" eye. Either the tumor or his surgery from 2 1/2 yrs. ago has probably done permanent damage to his good eye. His acuity vision is about 20/30 but the contrasting and perefial (sp?) vision is almost non-existant.
Evan's 2nd appointment was with the opthalmologist where they dialated his eyes for more vision tests. The diagnosis was pretty much the same as was in August. The doctor would like to follow up with another electroretinogram the next time we return.
Evan's 3rd and 4th appointments was Radiology Anesthesia and his MRI. He wasn't real co-operative as he was so hungry. His MRI was at 11:30 and he wasn't able to have any food since 6:30 a.m. I am going to insist on a morning MRI the next time we have to do this. It took him a long time to wake up from the anesthesia, making him a bit late for his last two appointments. So, the nurses called the Neurosurgery Clinic to send someone down to where he was waking up from his MRI so that they could program his shunt. They have to do this every time he has an MRI.
Evan's last appointment was with his oncologist. He stated that there were not any significant changes that showed up on the MRI, so his recommendation would be to do another MRI in 6 months. But, he said that he would have to put this before the TUMOR BOARD and see if everyone was in agreement with this.
We left with pretty high spirits and headed home from Seattle.
On December 11 I received a phone call from the oncologist telling me that the TUMOR BOARD along with himself had a change of plans and wanted to get Evan in soon to start chemotherapy. I was totally not expecting this, so needless to say, I was in tears. It was explained to me that because of the concern of the bad results from the eye tests that something needed to be done.
So, here we are, today, waiting on things to get set up for another out-patient surgery for a port to be put in Evan's chest where they will be able to administer the chemotherapy as needed. Our hearts are heavy and we feel like our faith is weak.
We will try to keep better postings concerning Evan's appointments and such. Until then, we would truly appreciate your prayers, support, encouragement and hugs. We know that God has a plan, but right now, we don't have a clue what it really is. We thank God for each moment of each day we have been given.
Blessings,
David and Trena
The day started with an appointment at the Opthalmology Clinic at 9 a.m. for an Electroretinogram. This was to get a more accurate measure of Evan's vision. His exam entailed the doctor putting several electrodes on his head to get a reading when he looked at a screen for contrasting and I think, perefial (sp?) vision. This doctor did not talk alot of details but did say that he even doubted that Evan even had counting fingers vision in his left eye, if any vision at all. His right eye, as we found out later from the test results, showed that there are also concerns with his "good" eye. Either the tumor or his surgery from 2 1/2 yrs. ago has probably done permanent damage to his good eye. His acuity vision is about 20/30 but the contrasting and perefial (sp?) vision is almost non-existant.
Evan's 2nd appointment was with the opthalmologist where they dialated his eyes for more vision tests. The diagnosis was pretty much the same as was in August. The doctor would like to follow up with another electroretinogram the next time we return.
Evan's 3rd and 4th appointments was Radiology Anesthesia and his MRI. He wasn't real co-operative as he was so hungry. His MRI was at 11:30 and he wasn't able to have any food since 6:30 a.m. I am going to insist on a morning MRI the next time we have to do this. It took him a long time to wake up from the anesthesia, making him a bit late for his last two appointments. So, the nurses called the Neurosurgery Clinic to send someone down to where he was waking up from his MRI so that they could program his shunt. They have to do this every time he has an MRI.
Evan's last appointment was with his oncologist. He stated that there were not any significant changes that showed up on the MRI, so his recommendation would be to do another MRI in 6 months. But, he said that he would have to put this before the TUMOR BOARD and see if everyone was in agreement with this.
We left with pretty high spirits and headed home from Seattle.
On December 11 I received a phone call from the oncologist telling me that the TUMOR BOARD along with himself had a change of plans and wanted to get Evan in soon to start chemotherapy. I was totally not expecting this, so needless to say, I was in tears. It was explained to me that because of the concern of the bad results from the eye tests that something needed to be done.
So, here we are, today, waiting on things to get set up for another out-patient surgery for a port to be put in Evan's chest where they will be able to administer the chemotherapy as needed. Our hearts are heavy and we feel like our faith is weak.
We will try to keep better postings concerning Evan's appointments and such. Until then, we would truly appreciate your prayers, support, encouragement and hugs. We know that God has a plan, but right now, we don't have a clue what it really is. We thank God for each moment of each day we have been given.
Blessings,
David and Trena
Tuesday, November 17, 2009
November 17, 2009 Update
Evan is scheduled for another MRI and several other appointments on the 2nd of December. I will plan to go over the day before as his first appointment of several will begin at 9 a.m.
Evan also has a natureopath appointment in Hemiston on November 30.
Evan continues to take 7 different special herbs, vitamins and such for his well-being, prescribed by his natureopath. Evan is such a trooper to take these capsules several times a day, mixed with applesauce. He sometimes like to alternate bites with a smoked oyster. He loves oysters, so we don't mind that he eats them as long as he also gets his meds. Some of these meds are taken 6x a day!
Prayer Requests would be for safe traveling to Hermiston, Seattle and back home; good reports with Evan's doctors (ophthomolgist, oncologist and natureopath); God's peace for the "what-if's" that seem to be bombarding my mind.
The on-going prayers, support, encouragement and donations have been so appreciated and felt by our family. THANK YOU so much! Evan's insurance continues to cover his medical appointments but nothing is covered for the natureopath and all that is being prescribed. We are so thankful for many people's donations to help pay for these "extra" expenses.
Until next time,
David, Trena and family
Evan also has a natureopath appointment in Hemiston on November 30.
Evan continues to take 7 different special herbs, vitamins and such for his well-being, prescribed by his natureopath. Evan is such a trooper to take these capsules several times a day, mixed with applesauce. He sometimes like to alternate bites with a smoked oyster. He loves oysters, so we don't mind that he eats them as long as he also gets his meds. Some of these meds are taken 6x a day!
Prayer Requests would be for safe traveling to Hermiston, Seattle and back home; good reports with Evan's doctors (ophthomolgist, oncologist and natureopath); God's peace for the "what-if's" that seem to be bombarding my mind.
The on-going prayers, support, encouragement and donations have been so appreciated and felt by our family. THANK YOU so much! Evan's insurance continues to cover his medical appointments but nothing is covered for the natureopath and all that is being prescribed. We are so thankful for many people's donations to help pay for these "extra" expenses.
Until next time,
David, Trena and family
Friday, October 16, 2009
Update from August - October 16, 2009
Evan's MRI on the 28th of August was done in Seattle at Children's Hospital. He also had an appointment with an opthomologist in Seattle at Children's. It was a very full day of appointments and then having to drive home in rush hour Seattle traffic!
His oncologist said that there was not significant growth from the MRI that was taken in August to the one taken in May. So, his recommendation was to do another MRI in 3-4 months and continue with this routine until we see significant growth (to which we would have to start chemotherapy) or decrease in size (which would hopefully over time, stretch out the time span that we do the MRI's).
His opthomologist appointment brought some surprises for us that we were not aware of. Evan has 20/40 vision in his right eye (not abnormal for his age) and "counting fingers" vision in his left eye. The dr. said that this was most likely caused from the tumor itself and/or from his surgery 2 years ago. She said the damage was permanent. The dr. checked his retina and eyeball and everything was normal.
Yesterday, the 13th of October, we had an appointment with Evan's natureopath. Since there were not any significant changes from the two MRI's, he changed some of his natural meds and is putting him on some stronger anti-oxidants and such.
We are so thankful for God's faithfulness in our home, family and Evan's life! He has proven His faithfulness again and again! We are also so thankful for everyone's prayers, support, encouragement and monetary gifts.
Evan's bank account funds that are set up in his name have been such a blessing. So many people have been generous and have donated on his behalf. What a blessing this has been!! We have used these donations to help pay for the nutritional supplements that his natureopath has him on and that his insurance will not cover.
Evan is on 6 different supplement/natural meds and one of them he has to take 2 capsules 6 times a day! When we went to his appointment yesterday, the bill was over $250. I have estimated that it costs approximately $300 per month just for these meds/supplements. Sometimes a little more and sometimes just under that amount.
Again, we are so thankful that we have the funds in these accounts to cover his expenses. Thank you so much for donating and remembering to pray for us and Evan. We feel our lives being bathed in them and the sustaining power of God's love overshadowing us each and every day!
Our prayer is that God would use our lives, home and family to glorify Him in all that we do and say and all that we go through in this life here on earth. May God ALWAYS be glorified!
Blessings,
David and Trena
His oncologist said that there was not significant growth from the MRI that was taken in August to the one taken in May. So, his recommendation was to do another MRI in 3-4 months and continue with this routine until we see significant growth (to which we would have to start chemotherapy) or decrease in size (which would hopefully over time, stretch out the time span that we do the MRI's).
His opthomologist appointment brought some surprises for us that we were not aware of. Evan has 20/40 vision in his right eye (not abnormal for his age) and "counting fingers" vision in his left eye. The dr. said that this was most likely caused from the tumor itself and/or from his surgery 2 years ago. She said the damage was permanent. The dr. checked his retina and eyeball and everything was normal.
Yesterday, the 13th of October, we had an appointment with Evan's natureopath. Since there were not any significant changes from the two MRI's, he changed some of his natural meds and is putting him on some stronger anti-oxidants and such.
We are so thankful for God's faithfulness in our home, family and Evan's life! He has proven His faithfulness again and again! We are also so thankful for everyone's prayers, support, encouragement and monetary gifts.
Evan's bank account funds that are set up in his name have been such a blessing. So many people have been generous and have donated on his behalf. What a blessing this has been!! We have used these donations to help pay for the nutritional supplements that his natureopath has him on and that his insurance will not cover.
Evan is on 6 different supplement/natural meds and one of them he has to take 2 capsules 6 times a day! When we went to his appointment yesterday, the bill was over $250. I have estimated that it costs approximately $300 per month just for these meds/supplements. Sometimes a little more and sometimes just under that amount.
Again, we are so thankful that we have the funds in these accounts to cover his expenses. Thank you so much for donating and remembering to pray for us and Evan. We feel our lives being bathed in them and the sustaining power of God's love overshadowing us each and every day!
Our prayer is that God would use our lives, home and family to glorify Him in all that we do and say and all that we go through in this life here on earth. May God ALWAYS be glorified!
Blessings,
David and Trena
Tuesday, August 25, 2009
August 25, 2009
A note from Trena:
A side-note from me:
Please keep Trena in your prayers during this time. When faced with unknowns - especially BIG unknowns - sometimes they can (and do) block out the fact that WE KNOW God is in control and His promise that He will never leave us or forsake. So, while praying for Evan, the doctors, technicians, etc...please don't forget (which I'm sure you won't!) to pray for his momma as well - that she will be strong and that she will be comforted (and reminded) that bigger arms are carrying her and Evan through this time.
Also pray for the family left at home! David will be a busy papa tending to his chicks!
I will be posting updates as I get them.
Many blessings -
Camille
I thought this would be the best way to let alot of people know what is going on with Evan. We are headed to Seattle on this Thursday afternoon for Evan's appointments on Friday morning. He is scheduled for his MRI, pediatric optomoligist and oncologist appointments. Your prayers would be greatly appreciated as we travel and for the MRI results. This is a HUGE thing as the results from this MRI will determine if we will start chemo on Evan.
A side-note from me:
Please keep Trena in your prayers during this time. When faced with unknowns - especially BIG unknowns - sometimes they can (and do) block out the fact that WE KNOW God is in control and His promise that He will never leave us or forsake. So, while praying for Evan, the doctors, technicians, etc...please don't forget (which I'm sure you won't!) to pray for his momma as well - that she will be strong and that she will be comforted (and reminded) that bigger arms are carrying her and Evan through this time.
Also pray for the family left at home! David will be a busy papa tending to his chicks!
I will be posting updates as I get them.
Many blessings -
Camille
Sunday, June 28, 2009
June 27, 2009
Thank you to all of you who have so generously helped us on this journey once again with Evan by continuing to pray for him and us and for all who have been so generous by donating to EVAN'S TUMOR TREATMENT FUND! We truly appreciate and thank God for you all!
Evan went to his first visit with the Natureopath doctor Thursday. He thought Evan looked good. He recommended starting him on three different herbs. These herbs are primarily for swelling in the tumor area of his brain and to discourage future tumor growth. The doctor said if Evan's oncologist chooses to start chemo, these herbs will not be an interference, but only enhance any chemo treatments, if they are needed. This will not be determined until after the next MRI, which is scheduled for August 28th. Also, on August 28th, Evan has an appointment with the pediatric optomologist (sp?). He will also see his new oncologist in Seattle on the same day. It will be a very full day!
So, for right now, our routine and treatment for Evan will be to give him these herbs 2x day until the MRI in August. This will be good, as it will give ample time for the herbs to be built up in Evan's little body and, hopefully, do what they are supposed to do.
Your continued prayers, support, concern and love are such an encouragement to us and we ask that you continue to lift Evan up, as our desire is to see God work a TOTAL miracle in his life and body.
When I can get with it enough to go online and check the balances on Evan's two FUND accounts, I will post the balances. I realize that some people don't really care about this detail, but I also realize that some people do. So, for those of you that do, I will try to get this done soon. Thank you again, for the many donations and support that so many of you have donated to. We truly appreciate it!!
Blessings,
David and Trena
Evan went to his first visit with the Natureopath doctor Thursday. He thought Evan looked good. He recommended starting him on three different herbs. These herbs are primarily for swelling in the tumor area of his brain and to discourage future tumor growth. The doctor said if Evan's oncologist chooses to start chemo, these herbs will not be an interference, but only enhance any chemo treatments, if they are needed. This will not be determined until after the next MRI, which is scheduled for August 28th. Also, on August 28th, Evan has an appointment with the pediatric optomologist (sp?). He will also see his new oncologist in Seattle on the same day. It will be a very full day!
So, for right now, our routine and treatment for Evan will be to give him these herbs 2x day until the MRI in August. This will be good, as it will give ample time for the herbs to be built up in Evan's little body and, hopefully, do what they are supposed to do.
Your continued prayers, support, concern and love are such an encouragement to us and we ask that you continue to lift Evan up, as our desire is to see God work a TOTAL miracle in his life and body.
When I can get with it enough to go online and check the balances on Evan's two FUND accounts, I will post the balances. I realize that some people don't really care about this detail, but I also realize that some people do. So, for those of you that do, I will try to get this done soon. Thank you again, for the many donations and support that so many of you have donated to. We truly appreciate it!!
Blessings,
David and Trena
Saturday, June 13, 2009
June 12, 2009
On Thursday, June 11, I went to the Tri-Cities with Evan and Brently to pick up much needed groceries since we didn't know just what would happen concerning our trip to Seattle and if Evan and I would be staying there for awhile.
Just before we leave from home, I get this call from a long time precious brother in the Lord, Leny Dragon. He and his wife, Roxanne, used to live in this area and now currently live in Missouri. He was in the Tri-Cities at a minister's conference and wanted to meet with me to pray for Evan.
He met us in the Wal-Mart parking lot where he and some others from the conference annointed Evan with oil, layed hands on him and prayed fervently for his healing. God's presence came down right there in that parking lot in such a might way!! I truly believe God is going to be mightily glorified through this whole ordeal......in His time and in His way.... NO MATTER WHAT HAPPENS!!
Today, Friday, June 12, 2009 David and I took Evan to an oncologist appointment at Children's Hospital in Seattle. After talking with the oncologist for 1 hr. 45 min. the prognosis and direction for Evan, at this point, is.......
1. Get another MRI the middle of July.
2. Get an appointment with a pediatric eye doctor to check Evan's eyes.
3. Get an appointment with the natureopath that works with the oncologist at Children's hospital in Seattle.
The oncologist in Seattle didn't feel like it was a "rush" situation to begin treatment until the result of the MRI in July is done. His reasoning behind this decision is to compare growth of the tumor from the MRI that was done in May to the one in July. Depending on the results of the MRI in July will determine if and when we start treatment for Evan.
This 2nd opinion has brought great relief to our hearts and home. The battle isn't over, we realize, but it doesn't seem as urgent as we were told last week.
We continue to ask for you to pray on Evan's behalf, for David and I to have wisdom and direction and for God's Peace to flood our home.
God is so good and we give Him ALL the glory, honor and praise He is so worthy of!
We will continue with the donation bank account that is set up at Chase Bank and one is in the process of being set up at Bank of Whitman.
Evan's insurance is covering the medical expense of his doctoring, for which we are thankful. We continue to trust God for the other expenses that his insurance does not cover for me to be able to be with him throughout all of this. He has been so faithful and we are so thankful for His provision and the generousity of so many individuals!
Again, we stress to emphasize our most needed "donation" is your frequent prayers on our behalf, your love, your concern and your support!
May God be mightily glorified in and through our family and lives!
Blessings,
David and Trena
Just before we leave from home, I get this call from a long time precious brother in the Lord, Leny Dragon. He and his wife, Roxanne, used to live in this area and now currently live in Missouri. He was in the Tri-Cities at a minister's conference and wanted to meet with me to pray for Evan.
He met us in the Wal-Mart parking lot where he and some others from the conference annointed Evan with oil, layed hands on him and prayed fervently for his healing. God's presence came down right there in that parking lot in such a might way!! I truly believe God is going to be mightily glorified through this whole ordeal......in His time and in His way.... NO MATTER WHAT HAPPENS!!
Today, Friday, June 12, 2009 David and I took Evan to an oncologist appointment at Children's Hospital in Seattle. After talking with the oncologist for 1 hr. 45 min. the prognosis and direction for Evan, at this point, is.......
1. Get another MRI the middle of July.
2. Get an appointment with a pediatric eye doctor to check Evan's eyes.
3. Get an appointment with the natureopath that works with the oncologist at Children's hospital in Seattle.
The oncologist in Seattle didn't feel like it was a "rush" situation to begin treatment until the result of the MRI in July is done. His reasoning behind this decision is to compare growth of the tumor from the MRI that was done in May to the one in July. Depending on the results of the MRI in July will determine if and when we start treatment for Evan.
This 2nd opinion has brought great relief to our hearts and home. The battle isn't over, we realize, but it doesn't seem as urgent as we were told last week.
We continue to ask for you to pray on Evan's behalf, for David and I to have wisdom and direction and for God's Peace to flood our home.
God is so good and we give Him ALL the glory, honor and praise He is so worthy of!
We will continue with the donation bank account that is set up at Chase Bank and one is in the process of being set up at Bank of Whitman.
Evan's insurance is covering the medical expense of his doctoring, for which we are thankful. We continue to trust God for the other expenses that his insurance does not cover for me to be able to be with him throughout all of this. He has been so faithful and we are so thankful for His provision and the generousity of so many individuals!
Again, we stress to emphasize our most needed "donation" is your frequent prayers on our behalf, your love, your concern and your support!
May God be mightily glorified in and through our family and lives!
Blessings,
David and Trena
Wednesday, June 10, 2009
June 10, 2009
It seems these days that I make a lot of phone calls and receive phone calls, all concerning Evan in some way or another.
Today and yesterday I took Evan to Othello for blood work. Evan has his first appointment in Seattle at Children's Hospital with Dr. Geyer. It is set for Friday, June 12.
Today I made the first deposit into EVAN'S TUMOR TREATMENT FUND at Chase Bank. We now have $2,000 in the account! Thank you all for your generous donations and MANY, MANY Prayers!
We would covet your prayers as we go to this appointment. I just don't know what to really expect and I am "re-living" 2 yrs. ago all over again. It brings such a wave of emotions at times. But I do know that God is faithful and we need to trust Him completely with Evan's life, no matter what the outcome may be.
Blessings,
David and Trena
Today and yesterday I took Evan to Othello for blood work. Evan has his first appointment in Seattle at Children's Hospital with Dr. Geyer. It is set for Friday, June 12.
Today I made the first deposit into EVAN'S TUMOR TREATMENT FUND at Chase Bank. We now have $2,000 in the account! Thank you all for your generous donations and MANY, MANY Prayers!
We would covet your prayers as we go to this appointment. I just don't know what to really expect and I am "re-living" 2 yrs. ago all over again. It brings such a wave of emotions at times. But I do know that God is faithful and we need to trust Him completely with Evan's life, no matter what the outcome may be.
Blessings,
David and Trena
Monday, June 8, 2009
June 6, 2009
Re: Updated information on Evan’s treatment plan
Isaiah 55:8-9 “For My thoughts are not your thoughts, nor are your ways My ways, says the Lord. For as the heavens are higher than the earth, So are My ways higher than your ways, And My thoughts than your thoughts.”
This verse says exactly what is happening right now in our lives. As of yesterday, our plans to seek treatment in Texas have been altered. Through many phone calls and many tears, we are changing Evan’s needed treatment to Seattle Children’s Hospital.
I will find out this coming week more details as the Oncologist from Seattle will be setting up a consultation date and time with us. They did tell me that they do move quickly and to expect to be over there very soon.
So………….if you were considering donating to Evan’s Tumor Treatment Fund we ask that you hold off for a bit until we have a new permanent treatment plan and place. Although Evan’s medical treatments will now be covered through his insurance, there will still be other expenses on our part so that I will be able to be with him through this whole ordeal.
We would appreciate your continued prayers, encouragement, concern and love. We serve an awesome God and we continue to trust Him with Evan’s life and future, even though we don’t understand all that is happening. We are not called to understand, but to trust and walk by faith. A task much easier said than done.
Blessings,
David and Trena
Isaiah 55:8-9 “For My thoughts are not your thoughts, nor are your ways My ways, says the Lord. For as the heavens are higher than the earth, So are My ways higher than your ways, And My thoughts than your thoughts.”
This verse says exactly what is happening right now in our lives. As of yesterday, our plans to seek treatment in Texas have been altered. Through many phone calls and many tears, we are changing Evan’s needed treatment to Seattle Children’s Hospital.
I will find out this coming week more details as the Oncologist from Seattle will be setting up a consultation date and time with us. They did tell me that they do move quickly and to expect to be over there very soon.
So………….if you were considering donating to Evan’s Tumor Treatment Fund we ask that you hold off for a bit until we have a new permanent treatment plan and place. Although Evan’s medical treatments will now be covered through his insurance, there will still be other expenses on our part so that I will be able to be with him through this whole ordeal.
We would appreciate your continued prayers, encouragement, concern and love. We serve an awesome God and we continue to trust Him with Evan’s life and future, even though we don’t understand all that is happening. We are not called to understand, but to trust and walk by faith. A task much easier said than done.
Blessings,
David and Trena
Thursday, June 4, 2009
May 29, 2009
To Our Dear Friends and Family:
We would appreciate prayers and support for our family as we walk through yet another difficult time of uncertainty.
Due to the health issues that our son, Evan, has been experiencing, we felt led to update each one of you. In 2007, at the age of 22 months, Evan was diagnosed with a brain tumor. Evan went through an operation through which the doctors were able to remove some of the tumor and place a shunt into his body.
Since that time, Evan has continued to move forward in his development and seemed to being doing well. However, at a recent check-up, we were informed that his tumor has grown. This growth gives reason for concern and requires definite medical action. We have gone to the Lord in prayer to discern what the best treatment plan for Evan would be. We have opted not to have Evan treated in Washington, as the doctors only offer chemo and radiation here. We and many physicians believe that is a death sentence for a child so young. Statistics show an extremely low survival rate using chemo and radiation in young children, and most physicians will tell you that they would not choose to treat their own child with chemo. At this time, we feel led to pursue treatment from a doctor at the Burzynski Clinic in Houston, Texas. The clinic will receive Evan’s medical history and reports from his surgery in June 2007 sometime next week. His first appointment could be 2-4 weeks from the time they receive Evan’s medical history.
Unfortunately, Evan’s insurance will not cover his treatment out of state, yet they would be willing to spend several hundred thousand dollars on chemo treatments for him in state. The initial cost to start treatment at the Burzynski Clinic is approximately $20,000. Monthly treatments could continue for up to 8 months at $7,600 per month. We also need to cover our airfare and motel accommodations. It would be so much easier if we could have Evan treated in Washington and just let insurance cover the expenses, but we do not believe the treatment options they offer are God’s will for Evan. There is no price you can put on a child’s life and we believe with all our heart that there is no sacrifice too big if it ultimately saves Evan’s life.
It is our hope that you all will continue to pray for us and support us. Our God is a mighty God and we have faith that whatever happens over the next few years will be conforming us into the image of His Son, Jesus Christ. It is our desire to be the hands and feet of our Lord wherever He sends us in this journey of life. Evan’s health issues are no exception. Evan's blog spot is being re-established and updates will be posted on a regular basis. This address is evangimmakaupdates.blogspot.com
A bank account has been set up for Evan. The fund is called “EVAN'S TUMOR TREATMENT FUND”. If you are led by God to donate to Evan’s fund, the account number is 823797261 at Chase Bank (formerly Washington Mutual Bank).
Please come together with us as we seek discernment, wisdom, and peace from God. We covet your prayers and draw strength from your love.
Resting in the Hands of God our Father,
David and Trena Gimmaka
We would appreciate prayers and support for our family as we walk through yet another difficult time of uncertainty.
Due to the health issues that our son, Evan, has been experiencing, we felt led to update each one of you. In 2007, at the age of 22 months, Evan was diagnosed with a brain tumor. Evan went through an operation through which the doctors were able to remove some of the tumor and place a shunt into his body.
Since that time, Evan has continued to move forward in his development and seemed to being doing well. However, at a recent check-up, we were informed that his tumor has grown. This growth gives reason for concern and requires definite medical action. We have gone to the Lord in prayer to discern what the best treatment plan for Evan would be. We have opted not to have Evan treated in Washington, as the doctors only offer chemo and radiation here. We and many physicians believe that is a death sentence for a child so young. Statistics show an extremely low survival rate using chemo and radiation in young children, and most physicians will tell you that they would not choose to treat their own child with chemo. At this time, we feel led to pursue treatment from a doctor at the Burzynski Clinic in Houston, Texas. The clinic will receive Evan’s medical history and reports from his surgery in June 2007 sometime next week. His first appointment could be 2-4 weeks from the time they receive Evan’s medical history.
Unfortunately, Evan’s insurance will not cover his treatment out of state, yet they would be willing to spend several hundred thousand dollars on chemo treatments for him in state. The initial cost to start treatment at the Burzynski Clinic is approximately $20,000. Monthly treatments could continue for up to 8 months at $7,600 per month. We also need to cover our airfare and motel accommodations. It would be so much easier if we could have Evan treated in Washington and just let insurance cover the expenses, but we do not believe the treatment options they offer are God’s will for Evan. There is no price you can put on a child’s life and we believe with all our heart that there is no sacrifice too big if it ultimately saves Evan’s life.
It is our hope that you all will continue to pray for us and support us. Our God is a mighty God and we have faith that whatever happens over the next few years will be conforming us into the image of His Son, Jesus Christ. It is our desire to be the hands and feet of our Lord wherever He sends us in this journey of life. Evan’s health issues are no exception. Evan's blog spot is being re-established and updates will be posted on a regular basis. This address is evangimmakaupdates.blogspot.com
A bank account has been set up for Evan. The fund is called “EVAN'S TUMOR TREATMENT FUND”. If you are led by God to donate to Evan’s fund, the account number is 823797261 at Chase Bank (formerly Washington Mutual Bank).
Please come together with us as we seek discernment, wisdom, and peace from God. We covet your prayers and draw strength from your love.
Resting in the Hands of God our Father,
David and Trena Gimmaka
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